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  1. large donner

    Potential new cure found for baldness

    Did they contact some opposing leading experts in baldness to incognito say it wasn't true?
  2. large donner

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Chronic fatigue is also a major symptom of cancer. But chronic fatigue is not cancer.
  3. large donner

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Some people showed us evidence of something so we asked people who didn't agree with them and they said they didn't agree.
  4. large donner

    AFME provide new self advocacy support material

    For the same reason they wont denounce Crawley, they have been in bed with her and even now after they claim to be listening and reforming this seems to be her using them for a booty call at 2am for old time sake! They really need to learn to say no.
  5. large donner

    Wessley

    How they faked evidence relating to shell shock patients and treatments....
  6. large donner

    AFME provide new self advocacy support material

    No they don't mean existentially deep, why would you think that? They mean between 153 to 204 metres deep.
  7. large donner

    AFME provide new self advocacy support material

    All this recent "engaging" nonsense we have been hearing about AfME was always nonsense. This new resource pack proves it. Its ..... ...FFS! I hate to say I told you so, but.... I TOLD YOU SO!
  8. large donner

    World ME Alliance, was previously IAFME: International Alliance for ME

    So, AfME need to publicly condemn Esther Crawley and bring up all the issues with her on the public record and that will help the WHO and the people in Geneva get a grasp of the kind of issues we are up against. Will you do that?
  9. large donner

    Anyone know the studies claiming to show if ME patients believe won’t get better they will not?

    That stands to reason in the same way that those who believe they have spirits around them are more likely to report benefit from visiting a psychic medium.
  10. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    Yes. Also he and others went on a world wide road trip promoting the over exaggerated claims from the PACE trial and collected many statements from other eminent people singing the praises of the conclusions. He has had ample opportunity to say "my job is just to write clear papers" over the...
  11. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    It may be the case that he thinks he's just too valuable to the people he has been working for, namely the government and insurance companies and they just wont allow their model to fail. He's always been bigger and had more control than the average person trying to get truths out, always had...
  12. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    Walking gives you a choice in how far you go, yet answering a question gives you no choice when the treatment is CBT? Interesting!
  13. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    Could England win the world cup playing in Russia in the summer by improving their performances using GET and CBT. No because they might not try, you choose how well play to play! But, they could win the world cup by undergoing CBT and GET not going to the world cup and then at the end of the...
  14. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    He doesn't trust the patients to walk to their full potential he just trusts them to say they could.
  15. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    I wonder if the burden MS talks of by getting patients to use actometers was the fact that they new it would potentially make people relapse disproving GET and CBT. What exactly does he think he is acknowledging by using the word burden?
  16. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    He would be like an annoying schoolboy who gets last hit on your back, then jumps on the back of the bus as its pulling off. I wonder if there is some kind of speed record on twitter for blocking someone who doesn't even have an account yet?
  17. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    I think hes mixing up, "how an illness is defined" and what symptoms a patients reports to a doctor with and how the doctor puts those symptom claims to the test. People in the PACE trial turned up with a symptom set, they were tested on their physical capabilities and told they would be tested...
  18. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    Ah so will you be advocating for NICE to withdraw CBT and GET or maintain them in the guidelines in that case? All the US agencies have used the information gathered from PACE to withdraw CBT and GET as effective treatments.
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