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One of the main problems though is that doctors don't apply any ME criteria when they "diagnose CFS". Neither do they rule out other things and they certainly don't advise follow up in order to get a clearer diagnosis as the illness progresses etc. To most of them if they can get you to say the...

Dear Mr Gunderson, Have you read the actual research publication. I shall be very happy to send you a copy.

Funny how they dropped all that in the trial as part of the objective measures. Although it seems there was no proof of returning to work after the treatments. I wonder if the DWP has an opinion on that now after admitting they had that as a desired outcome as a reason for funding the trial.

"We had a desired income from a scientific trial before the trial even started. Also people get ME from being unemployed, except yuppies who get ME from being employed and in their case work is stll the cure". Work is good for the healthy, bad for those too unwell to work your blood idiots...

Oh boy that should be a fun debate, pity it will never happen but if Gundersen wants to come to London around IinME conference time to do it ill gladly put up 50 quid towards expenses.

Release all the data Mr Sharpe before you ask others if they have actually read "it".

"Me and my mates have been doing studies as bad as the PACE trial for years with methodological flaws and as no one has bothered to look at either the methodology or the data before we just went around spinning and pimping out our unsupported conclusions to the medical insurance industry and...

It does make you wonder if this could become a get out trend as soon as an organisation or the government for example gets a request for information they don't want released, they just have to retire or fire the person who would be said to be the information holder. It sets a bad precedent.

Maybe the head of the stationary department has retired and they have effectively lost the means to locate and redact the minutes and find a black marker pen.

The PACE trial is now seen as a big piece of shit, null results on a subjective non blinded study with a made up criteria. If the Cochrane review supposedly backs up the findings of the BPS crew from the PACE trial doesn't that mean that the review itslef found all the other papers to be a big...

We are not even friends on benefits with them.

I have a solution for you, put your fridge outside - unless of course you have an outside loo and thats the only place you can store it, cos as they say don't .... where you eat.

£5 million or so will save billions when they deliver this shit instead of real treatments and investments. It will also make the bottom line look great for the big private sell off of healthcare so many lobbyists are desperate to see. Always got to cook the books a bit before a sell out!

Any support for the notion that, "citizen scientists," should not have access to data is as ludicrous as saying that only economists should have access to fiscal figures because the citizen electorate are just too untrustworthy to interpret them, or that only politicians should have access to...

Oh did you have to go and do that, I have just found a local butcher who makes his own "individual" steak and kidney pies, enough for two and deep as hell with huge chunks of meat and perfect pastry. On top of that I've spent three days trying to perfect a Lorne sausage recipe, which means lots...

Has QMUL stated publicly whether they have contacted Peter White asking him to obtain the data, retired or not? If they have has he refused to do so and what grounds has he given for refusing. Surely they would have to have contacted him to ask at least whether he would come in and help to...

Sometimes people capture so much in few words and a simple statement, its actually very hard to do. This is one of those occasions!!!

Ah then my previous post explains another issue, whereas her statement to you proves she is an ignoramus, no data required.

Well there may not be "serious flaws from the data", but its still a question of what the data shows. Lets say for example a set of data showed 70% of people to suffer adverse long term affects from a treatment and that data is never published, one could still claim the secret data shows no...

I agree. Also I think we should let her get through this PACE debate then start informing her about things like SMILE, FITNET and GETSET.