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  1. large donner

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    I just find it amazing that psychiatry, which relies solely on pontification, with zero objective proof required, can ever be considered to be the ultimate say in any issue. Its especially mind boggling when the logic can go something like this: The thing that happened could it some...
  2. large donner

    Activity pacing: moving beyond taking breaks and slowing down (Antcliff et al. 2018)

    I just find it amazing that in an obesity crisis with so many overweight children around somehow these crazies cant see that decondtioning is not the explanation for children with ME. There's no shortage of kids who need to lose a lost of weight who are perfectly capable of running around living...
  3. large donner

    PACE trial data

    https://uk.linkedin.com/in/joel-winston-b7286473
  4. large donner

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Bullshit!!! Its clearly the responsibility of NICE to state the facts about the inadequacy and potential harms of such treatments and make it clear to all other agencies that such treatments are extremely controversial and that the evidence is extremely dubious. They cant just claim its about...
  5. large donner

    PACE trial data

    As the DWP part funded this trial, presumably "in the public interest", if the secretary of state for work and pensions requested this data are they seriously telling us they would just tell her, "sorry minister the bloke what deals wif that dont work 'ere no more".
  6. large donner

    Virology blog has completely disappeared. Update : It's back!

    I think we should call you vexatious, say you are stalking us and claim we sent you a cease and desist letter then kick you out.
  7. large donner

    PACE trial data

    Maybe it was stored in underground bunkers that had walkways to the DWP and Whitehall and now that Peter White has retired no one else there has the clearance to walk down the channels to be the sitting Prime ministers bitch.
  8. large donner

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    The 28% figure from one of their catch all fatigue cohorts was probably 100% ME, the other 72% would have been a rag bag of fatigue people and probably even included people like the Georgia cohort from the CDC cold calling telephone survey, who may have answered yes to, "do you feel fatigued"...
  9. large donner

    PACE trial data

    Lets hope they never have anyone there who discovers the cure for cancer and then retires.
  10. large donner

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    It would be interesting if after 3 decades claiming to be the expert in the field he still has no figures on adverse affects, data aimed at testing the possibility of adverse affects or a single piece of feedback of such. It really shows how they design their trials and what data they prefer to...
  11. large donner

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    Ye, that's why the big networks and politicians are so good at predicting recent election outcomes cos its best to ignore social media and use your mates to tell you whats going to happen cos they are in the mainstream networks and so are you. Ignore direct information from the people they have...
  12. large donner

    Nature publishes response from Sharpe et al

    Ye I think they meant to say "we reject evidence from CBT therapies".
  13. large donner

    Positive Health Online: ME/CFS, NLP and the Lightning Process in the Looking Glass

    Interesting I wonder what wiki would have to say about the SMILE trial. Not that wiki is a reliable source but it would be interesting to start up a wiki page on SMILE and see what happens and if it gets edited and contradicts the wiki stance on NLP above.
  14. large donner

    Efficacy of web-based cognitive–behavioural therapy for chronic fatigue syndrome: randomised controlled trial (2018) Knoop

    Its also weird that they are doing CBT in isolation from GET, is this them actually telling people to pace and calling it CBT without the model of "ME is deconditioning".
  15. large donner

    Efficacy of web-based cognitive–behavioural therapy for chronic fatigue syndrome: randomised controlled trial (2018) Knoop

    So now that the patient doesn't have to get PEM from the travel does that makes CBT an effective treatment? Isn't this pacing or am I wrong in saying that if simple things like a visit to the clinic need to be eradicated to limit the symptoms of an illness then this is proof that their...
  16. large donner

    Lancet Infectious Diseases: Editorial, "A proper place for retraction", 2017, mentions PACE in passing

    I think there's a certain amount of genius in running a trial with such bad methodology on a large scale with a large amount of money, when its debunked it can be claimed that we still dont have an answer to the proposed questions. So potentially the trial, "has to be done again".
  17. large donner

    Proposed Letter to NICE

    I think its very difficult for an official body to respond "favourably or unfavourably" to, "please make sure you do this and please make sure you don't that", requests in what is supposed to be an impartial process. Even if they have woken up and smelt the coffee they would also not want to be...
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