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This is so true, Seven, and it's a direct outcome of the fake narrative of the psych school. Once you have a ME/CFS Dx, most docs stop looking. As if a patient couldn't have concurrent medical issues (even if they also had a legit psych issue.This is criminal negligence!) It is the height of...

If you have US$2000.00 and a doctor that agrees to Rx it....

Let us not allow it to get this far....

Grr, the more I think about this the angrier I get at the low-hanging fruit of academia! ME/CFS is also "associated" (geepers, what an easy pass!) with severe pain, body wide inflammation, inflammation/atrophy of the dura/brain, chronic infection, immune dysfunction, disabling exhaustion...

It is "associated" with a lot of things, Bub. You try having your career, income, social life, hobbies, stamina, independence, etc all sacrificed to an illness that has no known treatments and is interpreted by random people however they like so that they can blame you--and see how *your* mood...

If I weren't 13+ years into the illness I would apply despite the travel etc. Do let us know if they shift that parameter at any point. ETA: Great to see you here, Brian, thank you for joining us!

Moi non plus! ;)

Dear wonderful Wonko, I'm so sorry. I wish so much better for you. May it be so!

Yes, it's Rx, and must be compounded, I believe, in the US. In other countries I think it's still Rx but doesn't need compounding. I like compounds though to avoid reactive fillers.

Ketotifen has helped me a lot with the skin rash/hive/eye itchy/etc MCAS symptoms. The fasciculations come and go without any rhyme or reason that I can figure, except for sure when I've overdone. I've had a new one lately, a twitch in a muscle under my scalp on the side of my head, not one of...

Wonderful! Thank you for persevering and getting your excellent letter published.

Don't be rooed!

I feel like there is a nasty campaign of scapegoating and outright making up "needy" people to justify as you say service cuts. The whole trend right now is about pretending another's misfortune is simply evidence of their inadequacy as a person, and that success, health etc is the natural...

While I wholly understand peoples' concerns, the reality is that for all we know user @pootietang69 could be EC, @fluffmygarfield could be SW and @totallytubular PW. It's human nature to relax into some idea that we're all who we say we are and that we have some privacy or control here. We...

Yes but deploying a vehicle and personnel 300 days a year is a response, if we're to believe that. The article said the "top five" callers called about 5 times a day each, and had a team come almost every day. This just seems implausible to me, call me cynical.

And so it naturally follows that standing on a magic circle (instead of the vicious circle, of course) and shouting STOP is the answer to "basically everything."

I really need to know what adverse childhood events caused these peoples' professional sociopathy.

Me too. I sniggered :emoji_flushed:

Here's to you, Webdog :emoji_champagne_glass: Excellent communications all around, and thank you for sticking to it. I especially love the pivot from what not to do to what to do :emoji_clap: I may have to move back to California once you're through with them!