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@Mike Harley thank you so much, what you're doing is incredible! W00t!! :angel: :trophy@:emoji_military_medal::emoji_runner::trophy@:angel:

Warmest welcome, @Jonas Blomberg, thank you for joining us!

This reeks of straw man/red herring. Unfortunately law and legal proceedings are about who argues most compellingly, not about uncovering the truth.

THIS

I think we have perhaps stumbled into the same den of iniquity that caused the so-called UK ME files to be sealed from the public for something like three times the normal period of time. If someone could clarify, espicially for @dave30th 's benefit, what the files are and for how long they are...

Yes and they are relying on allies to come fill that hole with a load of fresh manure.

I don't understand. Data is data. A publicly funded trial was completed and filed. click, click click, send.

Hi @Pen2 , I am confused and can't chose either. I don't have insurance for such a thing, so it's all on me, and other sudden unexpected expenses have made a mobility chair/scooter less of a priority right now. I know I need electric as I haven't the strength to push myself, nor someone to push...

Absolutely thrilled to see you here, @dave30th . I wish there was a hero emoji I could click incessantly right now :ninja::ninja::ninja::ninja:

Dez has a great voice! I volunteer him! I also volunteer myself unless all the gal slots are full :) ETA: I dunno where Joey Tuan is these days, but he is a former a capella singer....

This is the same dangerous point of view that got Justina Pelletier, who suffers from mitochondrial disease, medically kidnapped by Boston's Children's Hospital and sectioned for over a year.

Do they even hear themselves? :emoji_speaking_head:

Oh, nice, she is a member! Thank you, @Nancy Blake!

Oh yeah, she's awesome. Can we invite her to join the forum somehow?

I think PwME get the dreaded "well" in their mattresses at least 2.5X sooner, due to being in them at least 2.5X more than your average 8hour bedrester. :dead: Latex seems to last much longer before breaking down, but beware, some of it is impossibly stinky and ensickening. I got mine from...

Haha, yes that's her. No idea if she'd be interested or appropriate here, just thought of her amazing david/goliath win with NIH.

No, I didn't mean Valerie, but always good to have a team to gather :) I think the one brain cell is on its own today, I'll chime in again if I can remember.

So many excellent posts and hilariously snarky ripostes on this sadly dire topic. Consider everyone "liked" X100. Very tired and stupid today, but I had a random thought regarding legal action: There is a PwME who is a lawyer, she has a blog and has sued (and won) for FOIA in the US. I believe...

darn it, i can't watch in any browser, even with VPN :(

Thank you for sharing your adorable self with us, @Jenny TipsforME. Vintage style suits you 100% :) I make zero effort with my hair or appearance, but you've inspired me!