Search results

Region Västerbotten are considering closing the ME clinic, in order to save money. Akut läge i Västerbotten https://mitteremitage.wordpress.com/2024/05/12/akut-lage-i-vasterbotten/ Make your voice heard and protest by sending a postcard: Demonstrera du också...

Krönika av Agnes Arpi: ME-patienter ses som bråkstakar med hjärnspöken https://www.altinget.se/artikel/me-patienter-ses-som-braakstakar-med-hjarnspoken

:thumbsup::heart:

LO-TCO Rättskydd AB: Kammarrätten gav person med ME/CFS (kroniskt trötthetstillstånd) rätt till sjukpenning https://www.fackjuridik.se/kammarratten-gav-person-med-me-cfs-kroniskt-trotthetstillstand-ratt-till-sjukpenning/

I chose to boycott the Millions Missing event that was arranged in Stockholm, Sweden. Part of my boycott was to not post any info about it here on the forum, in order to not give it any unnecessary attention. I do not support events by organizers that keep inviting speakers who disseminate...

They talked about conversion therapy and other kinds of false medicalization of asexuality in the latest episode (183) of the Swedish podcast Lustpodden. :thumbsup: https://lustpodden.se/poddavsnitt

"A new study suggests that fecal microbiota transplantation (FMT) can significantly reduce fibromyalgia pain, fatigue, and mood problems. I want to share what I think about the study, and what needs to happen next. The link to the paper is below. I don't think the complete paper is open-access...

For anyone who might be interested, this product is easily available in the Swedish online pharmacies: https://viruseptin.se/om-viruseptin/

I too would like to know, please. Would be interested to find out if something similar is available in Sweden, does anyone know?

"Pathogens, environmental exposures, medications, and your physical and mental states are all potential sensitizers of microglia. In this video, I cover the most likely triggers of chronic brain inflammation. - Jarred Younger"

News segment (1 min 30 sec) on Swedish radio, about the new ME specialist clinic in Gothenburg. ME-patienter har väntat på vård – nu öppnar regionens nya mottagning https://sverigesradio.se/artikel/me-patienter-har-vantat-pa-vard-nu-oppnar-regionens-nya-mottagning

I'd love to see a discussion about the different kinds of abnormalities of heart rate and blood pressure during tilt testing that Frans Visser talked about on the NIH ME/CFS Research Roadmap: Circulation Webinar (January 11, 2024): - POTS - Orthostatic hypotension - Syncope - No POTS, normal...

"I believe microglia are the primary culprit behind fibromyalgia, ME/CFS, Gulf War Illness, Long-COVID, and other chronic pain and fatigue disorders. Here is a quick video on what I am trying to do to fix the problem. - Jarred Younger"

Swedish news article in a local online newspaper: ME-patienter i limbo när vårdvalet slopades https://www.mitti.se/nyheter/mepatienter-i-limbo-nar-vardvalet-slopades-6.26.216820.51b74b2116 The specialist clinic that chose to close prematurely was Bragée ME Center, as most of you already know...

"Here is a quick update about my efforts to test dextronaltrexone in chronic pain, fatigue, and cognitive disorders related to brain inflammation. This substance has never been trialed in humans, and I want to tell you why it needs to be prioritized. - Jarred Younger"

A news segment on a Swedish morning TV show: Nyhetsmorgon: Så drabbar postcovid barn och unga – ”Som att ha ett mobbat barn”, 10 min 1 sek https://www.tv4play.se/klipp/fc6691761fd13d725f16/video-sa-drabbar-postcovid-barn-och-unga-som-att-ha-ett-mobbat-barn ETA: Sympathetic and informative...

Press release by RME (the Swedish ME Association) https://www.mynewsdesk.com/se/rme/pressreleases/europeisk-enkaet-avsloejar-svensk-kris-inom-me-vaarden-3316648

Sorry I mistyped, he said "ME/CFS patient" not CFS. My mistake, sorry!

Thank you for adding valuable info/links! Yes, super disappointing if the study doesn't require PEM? However, he mentions in this video that the first ME/CFS patient he's testing has to have PEM (at 4:53 min). Also, for anyone who hasn't seen the original video where he explains everything...