Search results

I am not sure that I would entirely agree with that. I have been aware all my professional life of how horrifying the system is - all those things that you mention. I learnt as medical student how disdainfully people are treated. My files as a student were marked down because of an incident when...

Just some general points. One is that I have already made it clear that psychiatric treatment can be bad as well as useful. That is a very real problem but it should not be confused with saying that psychiatric treatment is inappropriate for what may well a neuropsychiatric problem...

I don't buy the wrong cohort argument. Edwards's group were studying people that would be considered to have ME/CFS now I am pretty sure.

I think we have already said too much about an individual case. I have explained what I base my comments on.

The sort of scientific arguments that S4ME is so good at. Based on a clear line of thought about the pathophysiological possibilities.

Having read Behan's papers and having worked in Richard Edwards's lab for two years alongside the histochemists who studied muscle metabolism (David Jones, Joan Round, Mike Rennie etc.) I think this is an inappropriate analysis. Edwards concluded there was nothing to find. He may also have had...

I can see that this is the concern but in the context of a case like this it seems to me extremely unlikely. I have first hand family experience of psychiatric care of inability to eat of psychiatric origin. Some of the care was bad and some good enough to save a life. If someone is being...

I do not want together involved in discussion of an individual's diagnosis and management. However, I would urge people to stop and think whether the arguments being used here are sound. If ME is a serious condition affecting the brain, perhaps 'neuroimmune' as claimed by some organisations...

I think it is long overdue that we realise that we are colonial structures consisting of cells of variety of sorts, some with very similar DNA content, some not. Organism is a useful term for a colony but should not imply a single life unit nor should it imply a single subjective self. That is...

Aren't they supposed to be symbiotic prokaryotic cells?

Phew.

I am seeing this narrative a lot just recently. Is it me or is this completely ar** over t*t. When clinicians are unable to diagnose disease or correlate symptoms with measurable changes in biomarkers, patients experiencing such an illness are at increased risk for suspicion, misplaced...

I can understand the desire for a public enquiry but maybe it is worth warning people that it might produce the opposite of the desired effect. If an enquiry is set up by sympathetic people and advised by sympathetic people it will simply be dismissed as further activism. It will go the way of...

All together now. Oh yes it does... I didn't like the results because they truncated the Y axis and there is only one reason to truncate a Y axis folks.

But signatures could be collected over several good days. I would place a bet that you could get 500 signatures with a bit of effort.

I think a letter from s4me with 2000 members signatures might be more on the nail. In a sense professionals querying editorial decisions is counter to the concept of peer review with editorial freedom. you go round in circles. But 2000 patients complaining about poor editorial policy might wake...

Maybe there should be a letter from S4ME with 2000 members signatures. A letter to the editor is not going to solve an me/cfs professional organisation running a journal with a poor editorial policy but it would be a start.

I am not sure that these people believe anything. They see that following a fashion is their best way to get ahead. They very much give the impression that they do not have any ability to judge what is true and what is not so work on the principle that it doesn't matter. I have come to think...

This is the salient problem. I agree with Michiel in principle but reality has trumped theory.

Maybe it should have read: A review of the NICE guidance is currently underway (revised guidelines are due to be published in late 2021) [9]. Both CBT-F and LP were judged to be unsuitable for use. There is a clear need to improve treatments for paediatric CFS/ME.