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  1. Kalliope

    USA: InCellDx Dr Patterson - New lab service offering cytokine tests to Covid longhaulers

    I've not seen anything about this IncellDx until yesterday when I started watching a YouTube video of an Integrative Healthcare Conference with David Brady, Dr. Bruce Patterson, Dr. Richard Horowitz, Dr. Tom Fabian and Gez Medinger shared by @Anna H in the thread "Long Covid in the media and...
  2. Kalliope

    Long-term outcomes of pediatric infections: from traditional infectious diseases to long Covid, 2022, Buonsenso et al

    (my bolding) Conclusion There is increasing, emerging evidence that children can be affected by long-term SARS-CoV-2 sequelae and post-Covid condition, although at a lower rate compared to adults. Studies show that most children recover spontaneously within the first six months, but not all...
  3. Kalliope

    Long-term outcomes of pediatric infections: from traditional infectious diseases to long Covid, 2022, Buonsenso et al

    It shares three patient experiences. One with long covid and two with ME.
  4. Kalliope

    Science: The immunology and immunopathlogy of COVID-19, Merad, Iwasaki et al, 2022

    The latest edition of Science is a special issue titled: COVID-19: 2 years on On 11 March 2020, the World Health Organization officially characterized COVID-19 as a pandemic, triggered by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Science marks this anniversary with a special...
  5. Kalliope

    Science: The immunology and immunopathlogy of COVID-19, Merad, Iwasaki et al, 2022

    Abstract Considerable research effort has been made worldwide to decipher the immune response triggered upon severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections, identify the drivers of severe and fatal COVID-19, and understand what leads to the prolongation of symptoms...
  6. Kalliope

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Moved from this thread Can't see a date, but I think this presentation by NIH of dr. Avindra Nath and his work is new. NIH Viruses on the Brain quote: When it became apparent that many COVID patients continue experiencing symptoms like fatigue and difficulty concentrating long after...
  7. Kalliope

    (Coming) thesis: Tarjei Tørre Asprusten "Diagnosis of Chronic Fatigue Syndrome in Adolescents" - 2022

    The public defence of the thesis took place yesterday. Lightning Process coach Live Landmark says on twitter (quickly translated by me): - Take home message after today's thesis on ME: not important to fulfil the "strict" criteria. No finding of sub groups. The diagnosis is regardless set...
  8. Kalliope

    Long Covid in the media and social media 2022

    Time Researchers Are Getting Closer to Understanding Long COVID quote: Long COVID is also part of a much wider network of chronic diseases. It seems to overlap especially significantly with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)—a condition that can follow viral illnesses...
  9. Kalliope

    Cell Metabolism: The NADPARK study: A randomised phase 1 trial of nicotinamide riboside supplementation in Parkinson's disease, Brakedal et al 2022

    inews Pill that could slow progression of Parkinson's Disease could be available within five years quote: Trial participants found that taking nicotinamide riboside (NR), a form of vitamin B3, reduced inflammation in the fluid surrounding the brain and spinal cord, boosted the brain’s...
  10. Kalliope

    Norway - series of articles about ME in the newspaper Klassekampen, 2022

    Another great article in Klassekampen today interviewing professors Karl Johan Tronstad and Øystein Fluge. The article is paywalled, so here's a summary: They say the cause of the disease is still unknown and you can take samples from severe, bed bound ME patients and get normal results. -...
  11. Kalliope

    UK Dr Anna Chellamuthu, GP and Lightning Process practitioner, and her article in a GP journal

    Trial By Error by David Tuller British GP Journal Retracts "Opinion" About Lightning Process Written By LP Practitioner quote: This week, a journal under the umbrella of the British Journal of General Practice published–and a day later unpublished–a laudatory piece about the Lightning Process...
  12. Kalliope

    Long Covid in the media and social media 2022

    The Guardian/The Observer Covid pandemic sparks steep rise in number of people in UK with long-term illness quote: “It feels like we’re ignoring long Covid,” Thompson said. “People in the middle of their lives are getting robbed of their livelihoods, at risk of losing their homes. I can’t...
  13. Kalliope

    Is Long Covid a type of ME/CFS?

    Just discovered that CDC has updated information about ME and Covid-19. Perhaps it's been shared before, and I've forgotten, but here it is: ME/CFS and COVID-19: What we know CDC is working with partners and stakeholders to better understand post-COVID conditions and how they affect people...
  14. Kalliope

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    This post has been copied from the Long Covid thread here Just discovered that CDC has updated information about ME and Covid-19. Perhaps it's been shared before, and I've forgotten, but here it is: ME/CFS and COVID-19: What we know CDC is working with partners and stakeholders to better...
  15. Kalliope

    Cell Metabolism: The NADPARK study: A randomised phase 1 trial of nicotinamide riboside supplementation in Parkinson's disease, Brakedal et al 2022

    Summary We conducted a double-blinded phase I clinical trial to establish whether nicotinamide adenine dinucleotide (NAD) replenishment therapy, via oral intake of nicotinamide riboside (NR), is safe, augments cerebral NAD levels, and impacts cerebral metabolism in Parkinson’s disease (PD)...
  16. Kalliope

    Long Covid in the media and social media 2022

    The Atlantic The Virus That Causes Mono Does a Lot More Than That by Sarah Zhang Quote: The debilitating fatigue associated with long COVID and other post-viral syndromes does look, in some ways, like the fatigue caused by mono. And in the 1980s, doctors noticing the similarity had begun...
  17. Kalliope

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    The Norwegian ME Association is organising a webinar with prof. Brian Hughes on the NICE guidelines. Anyone can register on zoom for free and I assume most of this will be in English. It takes place 10th March 2022, 14.00 (local time). They've announced on Facebook that the webinar will be...
  18. Kalliope

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    David Tuller on Facebook: Yesterday I received a thoughtful note from Professor Miek Jong of Norway's NAFKAM agency in response to a recent letter I'd sent her. The letter was about the effort by a leading Norwegian doctor to denigrate my work by calling me an “ME activist.” Today I sent...
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