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I'm not sure if the quantity of replies is necessarily a problem, but those don't sound like helpful things to link to.

I agree it's not a core issue in itself, but think it could still be important. It could also be that a well done study, that properly explained to patients the potential problems with bias and nonblinded trials before assessing their attitudes to MCID in different circumstances, could be...

Just so people know, comments complaining about a post being rubbish will still be interpreted by social media platforms as 'interest' and so lead to them showing more people the post. At the same time, there probably is some value in having a careful and well cited critical comment. I've no...

It seems to really vary. Didn't PACE define MCID as half of a measures standard deviation at baseline? There can be research of really varying quality on this too, with some of it seeming to be designed to get a low MCID. I can't remember the specifics of the released Cochrane correspondence now...

Sorry - minimum clinically important difference. So if they have a low MCID it makes it easier for them to claim that their changes in questionnaire scores reflect an improvement in heath that is of real clinical importance that should be appreciated by patients and doctors and seen as more...

I was just thinking about their attempts to use low figures for MCID for questionnaire sores in nonblinded trials based on rsearch of seemingly questionnable relevance - is there any way to get someone to do a real study on this? eg: Explain to patients what MCID is and who it would be used, and...

Personally, I think that use of words like 'barbaric', unless fully and clearly justified (which I think would be difficult), is likely to be counter-productive.

I suspect that complaints will be viewed through a filter of bigotry at the Guardian, so would encourage anyone complaining to be very careful and cautious with the language used. They have an editorial code here, and that seems to explain what people are able to complain about...

That's probably why the coverage of the science is actually better than we're used to from the Guardian!

I wonder if the long time New Labour spent in power, and the creation of a 'Guardian-style' Establishment also played a role in making the Guardian very trusting of certain authority figures?

Again, it's difficult to know exactly what Shepherd was saying here... he could have just been reporting what the PACE manuals say about the models underlying CBT/GET, but I think it's often counter-productive to raise concerns about those sorts of things in the context of criticising PACE. It...

My comments from the other thread: They did speak to Shepherd who gave them some quotes that they could use to try to justify their spin - difficult to know what he said in context, but imo it's a terrible idea to ever combine criticisms of PACE with discussions about whether CFS should be...

New article in the Guardian makes it sound like they're preparing to celebrate the new Editor in Chief for bravely supporting PACE/Larun/etc in the face of vile activists...

New article in the Guardian makes it sound like they're preparing to celebrate the new Editor in Chief for bravely supporting PACE/Larun/etc in the face of vile activists...

I wrote this before the new article... but it seems like Sharpe is just right for them too! Don't bother with all the silly arguments and counterarguments! That would be the route to madness.

New rubbish article in the Guardian today: https://web.archive.org/web/20190728113855/https://www.theguardian.com/society/2019/jul/28/me-perils-internet-activism-michael-sharpe-myalgic-encephalomyelitis-chronic-fatigue-pace-trial They did speak to Shepherd who gave them some quotes that they...

Moderator note: Posts on this thread have come from three places, this thread and the following two threads. They have been copied or moved to keep the discussion in one place. Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19...

Didn't someone say Ian Sample might have some personal connection to Jo Marchant? I get the impression that the Guardian attracts a lot of people who like to imagine they're part of some sophisticated intellectual elite, but want simple narratives can't be bothered to really look into the...

I meant to look at buying some of these during the recent amazon sale... but completely forgot. Good to get the recommendation though.

Yes, which is a bit amusing given Ian Sample's smears against ME/CFS patients who dare point out the problems with Larun's work.