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Looks like quackery to me.

And Esther Crawley is on the Editorial Board: https://bmjpaedsopen.bmj.com/pages/editorial-board/

Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say much: https://researchportal.bath.ac.uk/en/publications/physical-activity-patterns-among-children-and-adolescents-with-mi (Edit: Open access...

I don't know much about the Australian situation, but this from 2018 refer to 'list B' as if it's still an issue: https://www.researchgate.net/publication/329444535_MECFS_NDIS_and_the_disability_hurdle Do you know if the Larun Cochrane review is being used to justify claims about GET's...

Though this shows nothing of the sort, I suspect Montgomery wanted it to be able to be used for this sort of propaganda.

At this point, I'd assume that any change the politicians want to implement is probably going to be harmful. I need a petition for 'Stop everything!'

Sorry to hear that @Suffolkres, especially after you'd done so much good work. There seems to be so much set against us here in the UK. Thanks to you, and everyone else who is working to try to stop things being too terrible.

Kelland can fairly be described as a propagandist, but that sort of labelling can end up being viewed as just an empty insult to people who don't know the details. People familiar with the details will recognise that the labelling in this blog was a reference to Kelland's presenting Tuller as...

I can't tell if Sharpe is an idiot or if he's cynically promoting stupid views that serve his interests. Could that phrasing re Kelland be a mistake - ie something that could be viewed/portrayed as a false claim that she had a paid position with the SMC, rather than a joke? Everyone who has...

“the authors of which included campaigners against any psychologically informed approach to the treatment of ME or CFS,” These are the authors: Carolyn E. Wilshire Tom Kindlon, Robert Courtney, Alem Matthees, David Tuller, Keith Geraghty and Bruce Levin Which of them is Sharpe claiming is a...

Would be interesting to know if any one applying for this had been informed of the project prior to the public release.

Yes, and there's so much uncertainty around ME that lots of people will have slightly different ideas on things. If it's alright and well meaning, worth making suggestions in as friendly a way as possible imo.

I found that using hand-held screens regularly led to problems with vertigo, particularly if I was looking down at the screen. I don't know why it happened but it seems to have stopped since I changed my habits. Best wishes with it - it was a really unpleasant thing to go through.

Welcome to the forum! I'm a bit suspicious of anything that looks like premature hype, but I guess we can see how the double-blind trial goes. Thanks for letting us know.

Sounds like they've failed to understand the problems with the SMILE trial: http://www.virology.ws/2017/12/13/trial-by-error-the-smile-trials-undisclosed-outcomes/

Sounds wise to me. I think that there's reason to concern about COIs relating to patients right to informed consent regarding a number of them, particularly Burton, and I've seen concerns raised about Stanton too.

Something from the NHS's Behind the Scenes that mentions problems with drop-out, but nothing else: https://www.nhs.uk/news/lifestyle-and-exercise/therapy-reduces-symptoms-irritable-bowel-syndrome-reports-study/

Some more coverage I'll edit in to my first post: https://www.thesun.co.uk/news/8838369/ibs-psychological-treatment-mental-training/ https://www.independent.co.uk/news/health/ibs-irritable-bowel-syndrome-cbt-therapy-nhs-a8864156.html...

My concern is that lots of the members seem to be free to take part in votes where they do have a COI, and where their behaviour would seem to indicate that hey are not a fit person to be making judgements on these matters that will affect the lives of others. That would be a concern to me...

Here's the Science Media Centre info on their briefing: http://www.sciencemediacentre.org/cognitive-behavioural-therapy-cbt-for-irritable-bowel-syndrome-ibs/ No mention of an expert reaction section though.