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https://www.telegraph.co.uk/science/2019/04/10/irritable-bowel-syndrome-psychological-new-study-shows/ https://www.dailymail.co.uk/health/article-6909319/Talking-therapy-cure-IBS-better-drugs-study-reveals.html...

There are lots of others, eg: Joanne Bond-Kendall's work with FITNET and MAGENTA.

Probably, yes. Though I doubt it would do anything now it would be worth being on record with these concerns on the assumption NICE will release something terrible in 2020 and there will be a long fight about that.

Not sure I agree with the central point, and there's some quackery in there. It feels a bit mean to say this about another patients work, but this is the sort of petition we could do without imo.

If you've got access, could you quote the google translate here?

Is there a copy of it anywhere? Doesn't really matter (I expect I'm not going to be able to read it anyway), but if you had a link I thought it would be worth posting, particularly as she is complaining about the 'rhetoric' of the ME Association.

I saw you mention Nina Anderson in this post - was a copy of that presentation posted on-line?

A new Aftenposten piece. https://www.aftenposten.no/meninger/debatt/i/awJM3a/Vi-onsker-bare-ME-pasientenes-beste--Ni-leger-og-psykologer via google translate: LOL at this: "We understand that it can be difficult to realize that thinking and behavior processing can affect such systems..."...

I agree re Burton. So Nacul is expected to withdraw in relation to non-pharmacological management of ME/CFS due to having co-authored this paper, yet Burton is not? (Gabrielle Murphy is the only other member with a similar statement). The same point can be made for a number of other members too.

That is kind of amazing.

A taster: Yes, that is the elephant in the room. I'm glad they had the integrity needed to raise concern about limited opportunities for networking - the hot topic everyone with an interest in services for CFS patients will have been debating recently. They don't spend much time considering...

A familiar Wessely... I have to admit to an instinctive bias against debriefing (which I can view as an interference in peoples' lives by professionals who often don't seem to really know what they're doing). I've always taken those Cochrane reviews at face value, probably partly because of that.

I don't really understand how they think of their fiddling of criteria to achieve results that fitted with their preconcpetions, but they clearly don't thikn that they've admitted to fraud. I'd like to have them speak more about it. It reminds of of the Wasink blog...

If we don't have access to any supporting evidence then I think it's worth staying sceptical. Did Osler's Web give say where the claim came from? I've not read Osler's Web, but when I was reading Johnson's blog I thought she could be extravagant in some of her claims.

I'd assume it's a reference to the recent response to Wilshire et al: "We prefer the definitions of recovery we used to those used by Wilshire et al. as they give absolute rates more consistent both with the literature, and with our clinical experience."...

If they mention worthless HPA axis stuff as part of a pathological model underlying CBT that wouldn't do anything to make the problems with the PACE any less worrying. (I can't remember if they do mention that HPA axis stuff there, but the researchers have done so elsewhere). Also, the models...

Thank John. Not sure I read that. I've not been keeping up on recent rulings like I used to try to. That context is important and I should probably re-read the ruling in light of that. I've had this happen so many times. When talking to someone new about these issues I will now try to take the...

I was just thinking about the concern raised about the number of FOI requests - the thing is, it's not likely patients concerned about problems with QMUL's actions/the PACE trial/etc have been trained in how to perfectly phrase FOI requests to get the right info. Also, as we're not some phalanx...

Sounds like there was so much annoying stuff in the QMUL submission. I wonder if they have student union disability activists who would be interested in the way they're behaving? There are bits that left me fuming. I think I'll restrain from commenting on that for now. I'm a bit flummoxed by...

Thanks to everyone who contributes to this. It's a really valuable resource.