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The review on IMDB makes me not feel desperate to watch this: "Then he dives into the world of life style changes like diet, supplements and exercise and how they have helped multiple MS pateints and with impress results." I hope those supplements have a good evidence base for efficacy. A lot...

There are a number of REF2014 submissions relating to rubbish CFS/MUS research - so frustrating. It should matter that hyped junk-science is used to attract huge amounts of government funding!

There was some junk science that led to people believing MMR vaccines cause autism. More rigorous research undermined these claims. A small group of campaigners then went on to try to use that specially selected anecdotes show that MMR really does cause autism. Wonder what made me think of that?

Rod Liddle was brave?!

I expected the piece to be more substantive than it was, and include some significant point that would need careful rebutting. Instead it turned out to be pretty empty propaganda. But then we had some people react stupidly on twitter and do everything they can to make themselves and other...

"the majority of members have not publicly expressed a view or published articles on the condition" Great - some are makng money from providing CBT/GET without having ever publicly expressed a view on the problems with the research underlying claims about the efficacy of CBT and GET. Are those...

I don't think it needed to be 'fixed'. Different emphasis highlighted different problems. There are so many ways of being irritated by just those couple of sentences!

p141 here: https://valerieeliotsmith.files.wordpress.com/2015/01/natarchbn141dss.pdf Maybe their interpretation of Wessely's letter on p227? Some of RyanNCTweets' messages look unhelpful to me, with over the top confidence about questionable claims and some needless insults. Just saw them...

It could be that unhelpful belief gets in the way of patients building up over time, but that there's some reason for patients not being able to rapidly increase their activity levels (physiological, or based on fear-anxiety that needs to be gradually assuaged through GET). There's no real...

Every time I open a FIEN document a new annoying thing pops out, eg: "Read the patient manual. Recovery depends on 1. Your ability to gradually build up exercise. 2. Your understanding of what predisposes and perpetuates CFS." So you'd really better accept what they claim predisposes and...

https://web.archive.org/web/20140811161130/http://www.fine-trial.net/downloads/Patient PR Manual ver9 Apr05.pdf I saw that this was off-line, but found an archived version so thought I'd post it here for anyone googling for it. It's a pretty annoying document, and those new to looking at CFS...

I knew I should have gone for "therapeutic nihilism" in my Evasive BS Bingo!

I feel like I've seen enough Wessely responses to those questions that I can reply for him: Do you think psychological and social factors "affect" all illnesses? Yes. And why has the PACE trial failed to provide any evidence that your treatments aimed at those factors have any efficacy in CFS...

Any looseness with language, simplification or inaccuracy will give people like Wessely an easy out. It's a difficult situation when it seems so many people are uninterested in reading a detailed analysis of the problems with their work but simple summaries are almost impossible to produce...

Back to more criticism only! I agree about the FINE quote you mentioned, but that Wessely one is often misunderstood as saying that the cause of ME patient's symptoms is only their beliefs (which is not what he was saying). It's annoying because it's more flimflam from Wessely saying very...

Oh yeah - sorry for only picking out the parts I disagree with! I do this with everyone and it's a bit unlikeable. I'll try to blame it on my ill-health?

Sorry - I wasn't clear. [now edited post] The new postures I meant was about their move to PPS/FND/etc, rather than about their "don't look at the science, just look at mistreated patients being unpleasant to us" stuff.

Maybe an exit strategy from 'ME'... before moving on to MUS/PPS/FND, where they'll have learnt from the past and be much more effective at manipulating people and covering up the problems with their approach. [edited sentence] I don't see this as them accepting defeat, but as a part of them...

When it comes to PACE, I don't think there's any benefit to over-egging things, especially if that could lead to other people using looser language than is useful. Written about where? I'm fine with quoting and criticising whatever people have written and read, but I think that there's good...

There was a lecture where Sharpe was saying that it was bad that certain groups of patients can be viewed as the "undeserving sick". Some people seem to have misunderstood his quote, or chosen to misrepresent it, as if he was saying ME patients should be classed as the undeserving sick.