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It might, but I don't trust the system at all.

Tuller's blogs related to Esther Crawley's work often make my head spin. "I have previously sent a Freedom of Information request about this study to Bristol University. I was informed that the university does not hold the documents of interest because the study was conducted out of the Bath...

I think that's right - this is drawing on data collected routinely though the NHS and you need to explicitly opt out from allowing access to your data rather than being asked to opt in. There are advantages to research like this, but so long as controlled access is being given to people like...

I can't really remember the details and don't want to risk misleading people, but there were a series of studies like this: https://www.ncbi.nlm.nih.gov/pubmed/21810109

Chalder has been trying to link CFS and eating disorders for some time, so this is a natural fit - from a certain perspective.

A couple of studies that could be of interest: https://www.ncbi.nlm.nih.gov/pubmed/15699087 https://www.ncbi.nlm.nih.gov/pubmed/21401284

I don't think that the problem is with you!

HRA setting up some new research transparency thing: https://www.hra.nhs.uk/about-us/news-updates/through-glass-darkly-blog-research-transparency-professor-andrew-george/ Amusingly, the membership of their current Transparency Forum seems less than transparent. Their membership list doesn't...

To me it seems likely that lots of people with different sorts of problems are likely to be lumped into the ME/CFS classification, and that some could have problems that are classed as 'mental health'. It's really not clear what it means for something to be viewed as a 'mental health' condition...

Is the title to this thread correct? What question was asked of the HRA? Also, someone just sent me this HRA response to the committee's more general concerns. I've not read it yet, but it looked like there were signs of hypocrisy in there...

His history with Crawley/PACE means that I don't trust Davey-Smith to do any work in this area, but that abstract looked okay aside from the Chalder fatigue scale, which is probably what was just included with the data. I hadn't seen people claiming that low vitamin D was a common cause of...

Shows the value of doing everything you can to opt out of providing data that people like Crawley can then be given special access to: https://medconfidential.org/how-to-opt-out/

Sort of feels as if his desire to make money from other patients should have been reported.

Looks like he's another of the Recovery Norge anecdotes Vogt has been collecting to try to manipulate media coverage with: edit: I just googled his name and this came up - is this a coaching company? https://www.purehelp.no/m/company/details/me-cfccoachingphilipgudimstroem/919542071

And the Kings Fund have decided MUS is a top 10 priority for integrating mental and physical health: https://www.kingsfund.org.uk/publications/physical-and-mental-health/priorities-for-integrating

I remember falling ill and not being well enough to do fun stuff, but not having any extra money because it all went on things I needed as a result of health problems. It makes the cuts to disability benefits all the more painful, probably especially for those who are newly ill and still working...

Given that it seems there's a relatively high natural rate of recovery amongst young people classed as having CFS (80-50% - although I realise there's often problems with this research and the way that people are classed as having CFS) it's pretty dodgy to present an individual story as showing...

We don't know the cause and are unlikely to find a cure until we do... that doesn't sound like something that should lead in to their recommendation of "strong reassurance".

I wonder how she'll fare against a probing critical thinker like Chalder.

Who decided Larun should be doing this research? After seeing how she dealt with the Cochrane review I wouldn't trust here to do anything related to CFS, even if it was just looking for studies.