Search results

Has anyone actually said that SMC are getting involved or is it just speculation?

No not Sheffield Sussex

This was yesterday

According to SMs blog yes getting up towards 5k I saw a tweet from SC saying it was 2k at the weekend before the charities/MEAction posted on their websites and social media

Good blog I will definitely share it. Positive news on the numbers 5k is really good and it will be great if it can be as many as 10k when the bid goes in.

Feel sorry for the staff but it’s not them who are the truly vulnerable. Very little emphasis on how the IAPT model is failing clients.

Isn’t it that in effect the Drs are saying this is interesting and worth further investigation. We keep saying Drs who prescribe off label should make their approach known so it can be investigated isn’t case reports the way of doing that.

Blimey I don’t think this is any kind of story these local outlets must be desperate for content.

is there any evidence Twitter is effective at reaching people outside the ME community through using ME specific accounts and hashtags? With MillionsMissing the reach on Facebook was quite limited when stuff was posted on the page and the people following would like but really not very good at...

That first sentence :banghead::wtf:

Pregabalin at a normal dose made me like a zombie and I had a fall and badly sprained both feet and my ME went up a level. I also found even on a very very low dose for neuropathic hand foot pain it gave me internal tremor which is a common side effect. I gave up taking it due to side effects.

Some great films mentioned on this thread. A matter of life & death is excellent it’s a great time of year to record films off TV I’m too cheap to get Sky Movies or Netflix or whatever. There are a couple of channels in the basic sky package that play old films and Film4 Sonymovies. I was...

Thanks @Naomi10 ive shared this on my Facebook people who follow me are just friends and family who don’t have ME. I took the opportunity of new year to do my own post about my 2 highlights of the year one of which was MillionsMissing and included a photo of myself at the event. So you...

Yes I realise that you’re not covered by the screening. I’m just trying to say that the issue of bowel cancer is higher up on the NHS agenda than it was.

They have introduced screening for bowel cancer for over 60s and a one off test at age 55 so I think notwithstanding the experience of the person you mentioned it is probably going to be taken seriously if you raise it with your GP.

So GET is now called psychosomatic therapy? At least that’s an honest description.

I suppose if he looks in on the forum he will see the comments and if there’s anything he can say to allay concerns he will pass that on to Andy. I presume he’s actually seen how this set up works and seen their data before commenting as he seems to think they have enough to present so maybe...

I think they’ve got unhelpful teaspoon beliefs. Definitely catastrophising.

Oh :wtf:what’s the betting she”ll be bringing out the Times magazine “letter” slide again.

held my nose and clicked on the link. It’s not what I would write but there aren’t any major issues with it. John Siddle and ME Association strategy of using personal stories to get their message into local and national media seems to be reasonably effective. Hopefully they will be able to...