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Dr Myhill needs to review this and consider her advice about Vitamin C

that must have been your doppelganger - Oknow

This reads to me like a “health business” rather than a charity

Have you got thermal underwear? My limited experience of being out in the cold is going to football aka soccer matches. As well as my long Lands End down coat with a hood that looks like I’m wearing a sleeping bag I’ve got some Lands End thermal long johns. I think the idea of using...

Have done

They have been brought in by OMF because of their exercise expertise. Until then they hadn’t had any engagement with ME. They have attended a couple of events they closed session of IIME London and the Boston event. They are on a learning curve - the announcement of their involvement with OMF...

Boom

And don’t forget to ask them how mirthful they feel about carrying the flower arrangement in a shopping bag

In terms of getting people who aren’t patients to ‘pass on the message’ to someone they know who has ME/CFS diagnosis i can say that in my experience when I said I had a referral to the hospital and then when I said I was going to see a private specialist in London my family and work colleagues...

Yes I think it does. I have gradual onset ME that goes between mild and moderate so I have better and worse spells where my limits seem to vary and PEM can be less bad sometimes. And yes it can be almost more difficult to keep things steady when you’re having a better day and you end up going...

One thing I didn’t bring out perhaps as much as I should have in my post #15 is how I had mild depression diagnosis (due to parents ill health/death - basically protracted grief) and this detracted from anyone -me included - picking up that my physical condition was getting worse. I think that...

What is unmirthful laughter - well I suppose sarcastic laughing isn’t jolly and mirthful. Maybe unmirthful laughter has an effect on chronic pain. A good dose of sarcasm.

I’m sure @Russell Fleming can answer for himself but it is pretty clear that his comments were about that article not your posts @JenB. And you’ve just said the article he’s commented on is problematic so I don’t understand why you seem to be taking offence.

Have they simply fallen into the habit that science and pseudoscience seems to have of dressing normal stuff up by giving it an impressive sounding “sciency” name rather than using straightforward English. What they really mean is using cannabis makes people sleepy and hungry. But that’s not...

. From what you hear on the Tour de France commentary the sports science people seem to have a lot of information about how the body uses energy. In some stages of the tour certain team mates deliberately push past what they would be able to sustain and then drop out of the lead having...

Interesting what you say about being able to stand for longer @Penelope McMillan. That piqued my interest as I struggle to stand for 10 minutes. I saw what you said about just because you can do more it doesn’t necessarily mean it’s a good idea. Did you get PEM after standing for 20 minutes?

Also Steph McGovern is moving from the BBC morning to do a daytime show on Channel 4. She did the interview on BBC about Unrest and appeared open minded would be worth approaching her as to my knowledge channel 4 haven’t engaged with ME as an issue at all.

Hate to say it but probably the Daily Mail would be a good place to get national publicity they have had some reasonable articles about ME in the last 2 years.

Agreed but In the prognosis section it does at least cover the finding which is as I understand it the best available information that only around 5% make something that looks like full recovery. It covers that the first five years is when that’s more likely to happen. It also says that people...

I knew someone with ME diagnosis so I’d heard of it and I knew he had had some long periods of sick absence. But I didn’t know what ME was or that I had it.