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I think (benign)ME and PVFS are classified by the WHO as the same. but re the post-ebola virus syndrome: from Wiki https://en.wikipedia.org/wiki/Post-Ebola_virus_syndrome

Included in the new Updated guidance for trusted systematic reviews: a new edition of the Cochrane Handbook for Systematic Reviews of Interventions Editorial | version published: 03 October 2019 https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.ED000142/full...

In a number of publications. https://www.independent.co.uk/news/science/nobel-prize-winner-medicine-peter-ratcliffe-william-kaelin-gregg-semenza-a9145721.html see also https://news.sky.com/story/british-professor-sir-peter-ratcliffe-in-trio-of-nobel-prize-winners-for-medicine-11829947

Not a recommendation https://www.bristolpost.co.uk/news/bristol-news/i-feel-like-im-stuck-3363188 (could have been a good article if it weren't for the opening line attributing it to bullying at school and subsequent use of 'chronic fatigue' throughout the article) eta: similar article in...

it has been added to wikipedia time it was scrapped altogether.

posted this link on another thread but has relevant info for this thread http://iacfsme.org/PDFS/Attachment-8-Professor-Simon-Wessely-Award-of-the.aspx

@Russell Fleming eta: see https://www.s4me.info/threads/a-perspective-on-causation-of-the-chronic-fatigue-syndrome-by-considering-its-nosology-2019-white.10635/page-4#post-189047

What if you were officially diagnosed with M.E. ? Speaks volumes as to what the DWP/Jobcentre Plus really think about M.E. so much for the recent 'training' from AfME https://www.actionforme.org.uk/news/action-for-me-hosts-dwp-spotlight-training/

taken from IACFS/ME Newsletter December 2012 Attachment 8 Only part way through it. a lot more on the PACE trial, the SMC, and Wessely. Obviously much has been covered elsewhere but worth a read. http://iacfsme.org/PDFS/Attachment-8-Professor-Simon-Wessely-Award-of-the.aspx

The basic history of ME, and CFS: the role of some of the key players, from an overall international perspective. The 'adoption'of/changing to CFS as a name as benefited insurance companies, the government, and in effect changed what had been considered a biological problem into a mental health...

unfortunately all that comes up on a google search now is " Exercise as treatment for adults with chronic fatigue syndrome ... https://www.cochrane.org › DEPRESSN_exercise-treatment-adults-chronic... 3 days ago - Authors' conclusions: Exercise therapy probably has a positive effect on fatigue...

not quite sure of the angle here. Yes the whole issue of MUS is a problem, but inadequate treatment is not the real issue. ME CFS and others 'they' regard as 'functional disorders' should simply not be there and certainly not 'treated' under IAPT.

eta:

" Be honest and transparent about your field of work" yes please do. Would make a nice change. these 'people with extreme views'

Moderator's note: this post as been moved from this thread.

AfMEs statement on their website re the new review: full post here: https://www.actionforme.org.uk/news/%E2%80%8Bcochrane-review-of-get-our-concerns/

Merged thread from IAFME Facebook page anyone have any more info?