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  1. Sly Saint

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    following some digging around at 'Companies house' on another issue, out of curiosity looked up LP/PP PHIL PARKER TRAINING LIMITED Phil Parker owns 75% of shares in Lightning Process Limited
  2. Sly Saint

    Sickness & behavior in ME/CFS (Chronic Fatigue Syndrome) - Jonsjö, Martin 2019 (Thesis)

    https://openarchive.ki.se/xmlui/handle/10616/46839 seems to be favouring ACT
  3. Sly Saint

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Only speculation, but I imagine that certainly in Bristol anyway they would come up with a mutually beneficial deal between the fatigue clinic and the numerous LP practitioners. I don't know how much the weeks/months of CBT and GET cost, but if it can 'all be sorted out' in 3 days of jumping on...
  4. Sly Saint

    News from Germany

  5. Sly Saint

    UK House of Lords/ House of Commons Questions

    Anne Main Conservative, St Albans To ask the Secretary of State for Work and Pensions, what steps her Department is taking to tailor medical assessments for benefits to take account of the needs of ME sufferers. Answer:
  6. Sly Saint

    Ampligen for ME/CFS

    AIM ImmunoTech to Present at the 21st Annual Rodman & Renshaw Global Investment Conference in New York City on September 10th Read more: http://www.digitaljournal.com/pr/4436902#ixzz5ykQqbKo5...
  7. Sly Saint

    UK article: Mum trapped inside home says she feels like a burden on her family

    article here https://www.cornwalllive.com/news/cornwall-news/woman-trapped-inside-home-describes-3286934 (not sure why she is having to crowd fund for this(?) there is the Motability scheme) https://www.motability.co.uk/about-the-scheme/personal-independence-payment/
  8. Sly Saint

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Patient Registry is the Key to Achieving Big Data for M.E. September 5, 2019 full article here https://www.meaction.net/2019/09/05/patient-registry-is-the-key-to-achieving-big-data-for-m-e/
  9. Sly Saint

    Receiving medical records in the UK - what is included?

    thats possibly only the electronic part; your records before then might not have been digitised yet https://www.gponline.com/gps-face-huge-task-digitise-lloyd-george-records-2022/article/1525421 eta: 6. Do I have to pay to see my records? Before the 25th May 2018, If NHS staff have updated your...
  10. Sly Saint

    Mike's EU Marathons

  11. Sly Saint

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    http://fionafinchcoaching.com/lightning-process/ what is this 'pre-course coaching'? was it included in SMILE? the Get Change team (Bristol based) https://www.getchange.co.uk/the-team/ https://lightningprocess.com/find-a-practitioner/ so to maintain their 'status' they have targets for...
  12. Sly Saint

    Monaghan & Shepherd meeting DWP and assessment companies

    also cognitive problems are under the 'mental health' as opposed to the physical section on the ESA which skews the perception of the illness.
  13. Sly Saint

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I think that #MEAction have 'left the building' since JenB decided to stop posting here. Would be nice to have some kind of official statement from #MEAction network @JaimeS @EspeMor @chicaguapa
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