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hmm The Cancer Personality scandal http://blogs.discovermagazine.com/neuroskeptic/2019/02/25/cancer-personality-1/#.XS7mRrjk_CM

from the above thread posted by @mango eta: have the 'core principles' changed? https://www.me-pedia.org/wiki/MEpedia:About eta: this page was edited in April 2019 anyone have an archived one from earlier on.

another similar story in Australia (didn't think it warranted a new thread) :emoji_face_palm: It goes on to talk about Ron Davis and the nanoneedle research. then ends with so rather mixed messages https://www.houseofwellness.com.au/health/conditions/chronic-fatigue-syndrome-alec-waterman

Esther Crawley https://www.s4me.info/threads/esther-crawley-what-drives-her-plus-quotes.1139/ eta: this quote was from a while ago.........maybe now she'd just look at her leg and say 'stop'(?)

as she is one of their advisors I imagine she already has!

Well she is one of AfMEs medical advisors; clearly a good 'fit'. see this thread: https://www.s4me.info/threads/pps-new-name-for-mus-integrated-care-for-people-with-persistent-physical-symptoms-02-10-2018.6732/ both JN and VD (unfortunate initials) involved.

I didn't know he was French(?)(as per article) Unfortunate turn of phrase here

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/756414/access-to-work-qualitative-research-with-applicants-employers-and-delivery-staff.pdf Interesting that this example is cited under Mental Wellbeing very selective in their quoting; note also...

I think Crawley was the most obvious high profile elephant in the room; but the CMRC has so many skeletons in the cupboard. If I remember correctly, Steven Holgate consulted Simon Wessely(?) But it must say something when Invest in ME Research won't join, and MERUK left.....then there are also...

another one at Bristol joining in on the LP 'gravy train' Dr Rebecca Barnes

Sharpe has tweeted the link again! One response at the moment.

Hywel Williams Shadow PC Spokesperson (Work and Pensions), Shadow PC Spokesperson (Brexit), Shadow PC Spokesperson (Cabinet Office), Shadow PC Spokesperson (International Trade) To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure ME clinics...

more info on this; Kutapressin now called Nexavir (it's an antiviral): Used as treatment by Dr De Meirleir, Dr Cheney,Dr Lapp, Dr Teitelbaum and Dr Enlander http://www.esme-eu.com/antivirals/nexavir-kutapressin-for-me-cfs-article447-135.html see also http://nexco-pharma.com/history.php

they have a 'talking' website! wasn't expecting that. my only reservation at the moment is I found this "Supporting the case for a full enquiry into the mistreatment of patients. More details can be found here." which takes to to Dr Myhills MAIMEs project including "WOULD YOU LIKE A FREE COPY...

eta: requires registering

This trying to produce a mouse model for ME/CFS is just ludicrous. You need to know what the disease is first. So you have in another study them forcing the mice to stay in cages semi-submerged in water and in this one forcing them to swim. Name me one ME patient who developed ME either way...

liked it until the very end with the 'advert' for AfME

part 2

Part 1

working on it