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  1. Sly Saint

    Vote for Invest in ME - Charity Acclamation award - voting closes 24th June

    no registration or anything required just click on the Invest in ME box and vote! https://www.claims.co.uk/charity-acclamation-award (please share)
  2. Sly Saint

    News from Scandinavia

  3. Sly Saint

    Mike's EU Marathons

  4. Sly Saint

    The Brain Charity - website content on ME/CFS

    Just came across this charity which is for people with neurological illnesses. So that's good that they recognise ME as a neurological condition. However, under the charities (AYME is still there) section in Online resources it cites the Cochrane Exercise review and below that Crawleys SMILE...
  5. Sly Saint

    Mirror: Woman, 28, goes from keen runner to year in dark room because of severe disorder

    S4C Documentary: Are ME patients being wronged by the government and NHS in Wales? | 14 June 2019 youtube link to full documentary and article of highlights at MEA website...
  6. Sly Saint

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    Social Prescribing seems to be taking off in a big way the RCof Psych just had a conference on it see other tweets at #SocialPrescribing
  7. Sly Saint

    UK House of Lords/ House of Commons Questions

    If, as they keep trying to say, IAPT is to deal with the mental health of patients, then why are only CFS patients given GET? Just that alone, I would think, clearly indicates that they are 'treating' the illness and it has nothing to do with helping with their mental health.
  8. Sly Saint

    Inclusive Education for Students with Chronic Illness—Technological Challenges and Opportunities - Anna Wood June 2019

    This is a preview of subscription content https://link.springer.com/chapter/10.1007/978-981-13-8161-4_8
  9. Sly Saint

    News from Scandinavia

    don't know if this has already been posted
  10. Sly Saint

    L.P. reported mentioned in parliament in May?

    you or someone might also like to point out that Crawley herself said that there was no evidence that the course(LP) would work or that it was not harmful if undertaken on its own. see this post...
  11. Sly Saint

    Jaime S - #MEAction Director of Scientific and Medical Outreach

    video re what @JaimeS does/is doing eta: written article here https://www.meaction.net/2019/06/10/jaime-seltzer-science-makes-the-impact/
  12. Sly Saint

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    Based on the CDC advice re pacing, and combining it with the possible astrological subsets, gravity therapy should be done while singing the following
  13. Sly Saint

    UK House of Lords/ House of Commons Questions

    "Jon Ashworth Shadow Secretary of State for Health To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support the mental health of people with long term conditions. Jackie Doyle-Price The Parliamentary Under-Secretary for Health and Social Care...
  14. Sly Saint

    Central sensitisation: another label or useful diagnosis? (2019) Nijs et al.

    Podcast: Interview With Musician Stephan Weiner About Music, Chronic Pain, and Mental Health Diagnosed with Central Sensitization Syndrome by the Mayo clinic...
  15. Sly Saint

    Australia: News from Emerge Australia

    Article - Dr Heidi Nicholl explains what we need to know about chronic fatigue syndrome - 7News June 2019 https://7news.com.au/the-daily-edition/chronic-fatigue-syndrome-is-a-very-real-condition-heres-what-you-need-to-know-c-160622 (couldn't view the video, but guess the above is a transcript?)
  16. Sly Saint

    Article - Craig's story - June 2019

    On AfME website The article is largely about more help for carers which is important but highlights other problems ie being put in WRAG for ESA resulted in worsening condition; (see AfMEs work leaflet...
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