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  1. R

    Jen Brea: My ME is in remission

    you think, we better not ask ?
  2. R

    Jen Brea: My ME is in remission

    should be easy, when jen (coxsackie?) and jeff (EBV?) would publish the lab-chronology of titers (measurable things) they claim improved - before and after treatment... should be clear to them, that there is considerable community-interest in precision on this. what virus did the 3rd...
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    Jen Brea: My ME is in remission

    yes. do you want to forbid it to them ? or keep info secret ? if you see yourself sinking, you are naturally desperate. it cant be avoided, as long as ppl dont have any other hope or help. dont blame the (false) messengers. to blame is the medical profession. they are creating it all - the...
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    Jen Brea: My ME is in remission

    yes, robert... thanks for the input... imo, its not the problem, that these ppl share their story, but that other ppl here dont ask questions. e.g. all those pages and nobody answered the meds-questions. nobody here bothered to ask them (again). if such threads in a "s4me" forum only can come...
  5. R

    Jen Brea: My ME is in remission

    we dont have anything else really. just personal stories. imo its important to evaluate and think about implications of such experiences. perhaps even in particular, if things dont make straight sense to one. or dont seem plausible. if such threads are an issue, then they could be marked in...
  6. R

    Jen Brea: My ME is in remission

    in the top-10 professions of psychopaths - surgeons - chefs are the top 2, i think (both have knives...)
  7. R

    Jen Brea: My ME is in remission

    then she goes from moderate to resolved with either of 2 surgeries (from link above): resolved by Craniocervical Fusion Surgery (2018) - marked, rapid physical and/or cognitive fatigability in response to exertion - post exertional symptom exacerbation - post-exertional exhaustion - recovery...
  8. R

    An old medicine as a new drug to prevent mitochondrial complex I from producing oxygen radicals

    anyone found how this med was called in 1696 or for what it was used ?
  9. R

    Jen Brea: My ME is in remission

    i havent read the medical papers that seem to explain the improvement on ebv-titers... but i understand, it can be explained that the INSTABILITY caused HIGH titers. however, the procedure is very intrusive to the body. in addition, new material (3rd party or own bone-stuff) is brought in...
  10. R

    Jen Brea: My ME is in remission

    the other thing i not really understand is, that these ppl were not sick very long. a few years. then the spine-related issues must have happened in light-speed. but nowhere else in the body ? shouldnt that happen even earlier ? (e.g. artificial knee, hip replace... ?) why does it hit the...
  11. R

    Jen Brea: My ME is in remission

    seems the forbidden question, sort of am wondering: benzos, painkillers so, meds before, and meds related to surgery: before and during the 12 months period, till reporting point
  12. R

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    i would think "other" performance tests may be interesting, and get much deeper insight into reduced exercise "tolerance" - normal under "load" (weights added) - incline walking ...sure, it then sounds like someone has a lung-heart-prob rather... but there seems nothing measurable... but im...
  13. R

    An old medicine as a new drug to prevent mitochondrial complex I from producing oxygen radicals

    OP2113 CAS 532-11-6 5-(4-Methoxyphenyl)-3H-1,2-dithiole-3-thione, Anethole trithione | C10H8OS3
  14. R

    Diagnostic lab tests - ideal list for medical care guide

    its really gross, that there are measurable and mostly visible damages all over the body, and nobody can figure where they come from. its a closed system of 1.80 m x 60 cm or something like that. roughly 1 sqm to investigate. they are at it for a couple of 1,000 years. one could also consider...
  15. R

    2 metabolic traps/2 types of ME/CFS

    fatigue is chronic exhaustion, all over the body. tiredness changes and can make it impossible to keep upright. its like sort of "torture".
  16. R

    Diagnostic lab tests - ideal list for medical care guide

    the nanoneedle-signal is the same for MS and MECFS ... NO, its not, as hutan explained. i misread this, sorry. what exactly to ask for regarding a diagnostic MS-MRI ?
  17. R

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    those who have side effects on copaxone may not be candidates for the nanoneedle-signal (as tested) would be interesting, to see the nanoneedle signal-test for people with no/worsening effects after copaxone. but, how great would that be to have a device and test in advance if copaxone will...
  18. R

    Red-brown speckles on palm of hands and fingers

    you also have small bumps in the palm ? (on the pic it looks so, above the brown spot)
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