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I’ve been using bicarb for a while - and my entirely subjective, anecdotal, n=1, conclusion is that I think it helps! :thumbsup::D

That seems a sensible approach. Will do. :)

Oh! Yet that is incorrect info supplied in response to a question, so surely there has to be some way of correcting the record?

Has anyone asked for a correction? If not how would this be done?

My bold. The new guideline is for ME/CFS, not CFS/ME. An important distinction, and an error that should maybe be corrected on Hansard?

It’s a difficult one. If drugs are not the first option, and serious CBT isn’t either, then what is the first option? Do people respond to the idea of “Doctor’s orders” to take a 10 min walk outside each day? Or is that discarded as easily as the general advice of friends? So what then should...

Interesting that CBT is described as “high intensity psychological intervention”, which seems to clarify that it would have the potential to harm if inappropriately applied.

I suspect this might actually be a good thing. I think there is a much too hasty dash to medicate depression. Of course in severe situations, medication might be well advised, but I suspect for many, early medication of milder depressive issues just complicates matters.

In terms of “psychosocial factors”, the only usefulness to this might be in putting in place better social help for those in need. (Whether that need is psychological, or physical).

@Esther12 I agree, but only up to a point. Certainly there will be those who have been very badly affected by the pandemic. So the number of people experiencing psychological stressors is going to be high. Getting covid, then “recovering” but not actually recovering to full health, is...

Just filled in my responses this morning. In some ways knowing that LOTS of people are filling this in makes it easier, because if I have had an over-sight and ignored a valuable question, it is likely that others have picked it up and included it.

I think this & the one about problems coming after the patient leaves the clinic are very good points.

Fixed that: Conclusions. The findings indicated that it is possible for some people with CFS to remain in work, but less than 10% of those who had left work were able to return to work, this was likely due to having a disabling illness. Work-related outcomes should be used with great caution...

It’s frustrating that these folk take their ideas and use them to malign individuals facing issues that are clearly not just ruminations of the mind. Surely there is enough work helping people who are genuinely struggling to cope with reality, without trying to label every poorly understood...

That might be part of it. I was in my late 40’s when I got ME, and I had no disbelief from my family. So maybe if I’d got ME before my career, and before having my family, and with less understanding from those around me, then maybe I might have found myself being pushed into a position of...

Oh! Right! I read it thinking that the bit I quoted was coming from Peter Shaber who I thought was the main speaker at the workshop. Hmmm. Maybe you are right.

Is Katharine Cheston on here? Can she perhaps explain this major misunderstanding to the speaker?

@JemPD Snap!

From the blurb above: I would argue that patients “are shamed” by some professionals, but they don’t necessarily feel a “sense of shame” themselves. I didn’t. I felt frustrated by the lack of understanding, and the fact that certain parties thought I should feel ashamed. Different emphasis...

That would tally with my experience. I also suspect that we clear adrenalin slowly, meaning the period of feeling “dangerously okay” is extended. (A friend & I described the period after an event as “dangerously okay”, because we feel okay, but if we continue to do stuff we will make PEM much...