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Okay. Each on their own can be sufficient I guess. As you were! ;)

Re: Fatiguability - might a means of maintaining blood pressure reduce the fatiguability? Would it help keep capillaries perfusing even with the increased resistance of poorly deforming RBCs and potentially sticky microclots? Personal observation: I do agility with my dogs and this involves...

Thank you! Your explanation makes sense. :) I think I got stuck on the BPS interpretation of the word “functional” and couldn’t see past it! :facepalm:

Could you expand on what you mean here please?

In my view an active live is a symptom of good health. And a reduced life, a symptom of reduced health. Is there any evidence that pushing people to artificially display symptoms of good health, improves the underlying poor health? Certainly not when I try do normal stuff without regard to...

I was about to start typing something, but honestly @adambeyoncelowe has just said it all better. However, I’m proud of what the committee, that I was part of, achieved with this guideline. Is it word perfect? Of course not! When there’s a committee with a range of viewpoints, there will...

But weirdly CG53 is still up

I’m still getting “In Development”

So I’m not the only one planning on checking just after midnight then?

No. You are right. No specialist service yet. Long story.

I use Chrome. Didn’t think to try another browser, but managed to compile a shop from previous orders. Hope that trick will be useful for others.

Feeling a bit smug now…. My previous orders were still linked to my account. SO, I went and added the last four orders to my basket (okay far too much stuff, but reckoned that would cover most of what I regularly order including the less frequent things). Then I just went in and deleted out...

Tesco’s may be back online, but ALL my favourites have disappeared!!!! :( It’s going to be a pain having to go and find each individual thing again. Meh.

Ah Brilliant. I went to the page you linked that said Look at the questions. Probably if I’d gone first to Take the survey, I’d have seen the link. :P https://www.psp-me.co.uk/take-part/questions-long-list/

An option to print just the list of questions would be a nice touch. Though that can also be achieved by printing out just the relevant pages (4-10) of the “Print Survey” button. I think a big list like this needs to be scribbled over before I could choose my top 10. :P

Meh…. I lost connection while writing a post in reply to several comments here… and the internet ate it. :( Tomorrow….

I agree that adrenalin can tempt one to do too much, and so get PEM. But the emotional response to a distressing situation, even without activity, can also cause a PEM response. I’m assuming it is the extra brain exertion processing the situation, but the PEM can happen even without the...

So if we are talking about “what’s going on with ME”, and throwing some ideas into a mixing pot, here are a few of mine: (There have been a few more posts as I was typing…. ) 1. Adrenalin: I can perform much better under adrenalin’s influence. As a biologist I recognise it as the...

Yes this! I find the world looks altogether more bleak, and almost scary, when I’m in PEM. It’s not as terrible now as it was when my ME was worse, but it’s still something that I now know to expect. Luckily for me, that aspect of PEM rarely lasts longer than 24 hours even if the other...

Might not “emotional dysregulation” be caused by an underlying “physiological dysregulation”? The former may simply be a symptom of the latter? Though of course the BPS folk may say that the latter gets caused by the inability of the individual to regulate their personal emotions. Why do they...