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I agree. My revised title was “Graded exercise therapy for ME/CFS is ineffective and unsafe.” But either is better.

@Wonko What you are saying is similar to my thoughts in this post. http://sallyjustme.blogspot.com/2016/05/disposable-energy.html

#BiasTrial - Yup! @rvallee Sure seem that way. Perhaps we need to rename it!

Because they are things With no objective measure, and so subjective answers can be managed to play to their narrative?

Yes - @JoanNI and co hope to have video & slides available soon.

David up in a moment.

I ‘think’ it will appear on the Hope 4 ME & Fibro NI Announcements page on Facebook. Or at least a link will appear there detailing where to find it.

Thank you for that vote of confidence- I appreciate it. Xx

Merged thread Livestreaming from Newry tomorrow night. Also Brian Hughes, author of Psychology in Crisis

Done

Edit: Okay it’s away now Countryfile@bbc.co.uk [Meh! I keep getting undeliverable on that. Does any one have a working email for them]

I’ve sent this email to Countryfile (hope it was the right email address) “Hello Countryfile Ramble organisers. My attention was drawn to an article in the Ulster Herald about a young ME sufferer who is going to attempt one of your rambles. I am a concerned about it. ME is a disabling...

Tomorrow night ;) But yes, it would wouldn’t it

Email sent to the journalist. Hello Victoria, I noticed your article in the Ulster Herald about “Brave Mark”, a young person with ME, who wants to inspire others with his recovery story. First I want to say that I am absolutely delighted to hear that this young man has managed to recover...

Oh dear!

It’s just finished now. Sobering - but also optimistic about the way forward. Good programme.

I understand there will be a video on the site afterwards. It may only be broadcasting to Belfast area now. Watch this space.

Well done @JoanNI for setting this up.