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@Trish I lost about half a stone over the first few weeks. (I started in April) I’d have liked to loose another few pounds, but heigh-ho at least now my weight is stable. And easily stable. I never found it easy to maintain my weight when I are carbs. Actually, I’d like to be the weight I...

:(

@Sarah I spoke on Twitter with Todd Davenport a few days ago. It seems the committee has not yet gathered to discuss this issue. He was still sympathetic, but I fear the damage of this letter has already been done. The CDC guidelines now talk about stabilising then increasing. It's a...

Hmmmm.... Personally I would say I have a bigger problem with carbohydrates, and especially sugar. Not a nice experience when I eat a sugary something (and that is from before all the keto I'm doing).

Fasting helps me. If I'm "doing" anything extra I find I do better not eating til after the event is over. Last year I did 2 x 36hr fasts most weeks. And they were everything except coffee (with a splash of milk). I started keto in April, and paused the longer fasts. I probably need to...

I too am on a low carb diet - aiming towards keto - and it has really helped me. HOWEVER, please be cautious. I can have periods of several days where things feel really good, but I can still dip dramatically after a few days doing more than my new ceiling. Please take a month or two to...

This may have been answered elsewhere, but why are references to other documents in the Guideline Scope not actually referenced? eg p2, line 10 mentions a "UK primary care cross-sectional study" which it doesn't give any further information about!!!! Maybe I've missed something here. I'm a...

The question was created a while back and emailed to JS as a suggestion. He then decided to ask it. As you say @Sasha I might have worded it slightly differently in light of recent developments. Edit to add - I’ll try ringing on Monday to see what is happening with the question.

Here is the question I asked him to ask.. "How exactly should harms from the therapies of Cognitive Behavioural Therapy and Graded Exercise Therapy be reported, in order to ensure there is an adequate recording of those harms? Patients are concerned that these therapies are assumed to be...

Jim Shannon MP asked a question on my behalf a few days ago. But he asked Jeremy Hunt. He may need to redirect it to the new man now. Hectic

It’s not opening for me @adambeyoncelowe but guess it is the same as reply I got just now. Agree it is strange no one wants to collate these harms officially.

And now this Thirty Mental Health Experts Write to Secretary of State About ‘Unprofessional’ Conduct of the UK Royal College of Psychiatry https://www.madinamerica.com/2018/07/30-mental-health-experts-write-secretary-state-unprofessional-conduct-uk-royal-college-psychiatry/

Jim Shannon MP has now asked, on my behalf, how CBT/GET harms should be reported. He will let me know when there is a reply.

Course videos are interesting. Okay I admit it, I’m a nerd Also one of the organisers has a friend with ME. He was sympathetic.

I’ve done Coursera courses previously. So I’ve signed up on this one too. I’m writing my introduction now, there’s a thread there for that. See ya all in there.

Welcome Peter Gordon. Transparency seems to be an issue in many areas. Regarding anti-depressants - I was offered them “because they help with ME symptoms” even though I clearly was not depressed. Luckily for me others warned me of the withdrawal issues, so I handed the script back.

Alternatively I’ve heard CBT for ME, described as - GET with the added push from the psyche angle to adhere to physical increases. Both push for increase, even if they pull back first, the aim is to return to normal functioning. Having said that both therapies are devised in line with a...

So it seems the MERUK article has been updated. The answer to Jim Shannon was correct. No Yellow Card reporting for psych therapies

Yes it seems so. I can’t help thinking however, that patient input will not be given the same weight as GP responses. It’s back to the same old chestnut, that patient testimony is disbelieved. Same reason that charity surveys are disregarded

So frustrating I tried to add the following comment on Virology Blog, but it doesn’t seem to stick: (I tried splitting it up, also using other IDs eg FB Twitter, Discus, Google! Still no joy. Meh!) All these therapies, that attempt to use mind games to convince the chronically ill that they...