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Sorry couldn't help myself:

WOW!

Oh! So only some of the documents are still available. Meh. Too late to think now, I'll look again tomorrow. Did they ONLY put up the therapist manuals for each of the four trial arms? But not the other documents? It would seem daft not to have all available. Gah.

Just catching up with this project now and I have to say! Wow, BRILLIANT work Gary! You've got just the right voice for this. All works really well. Keep it up.

Yes. I sent him a thank you... Actually two. One when he said he'd look into it, and one when he reported back that they were online again.

Apparently now back online. I haven't checked yet.

Thank you @BruceInOz -very useful. Seems Prof Sharpe wasn't aware they were now behind a login. He says he's going to ask QMUL.

Disgusting. I would say it is vital information, and no doubt the figures are "not available" simply because they know it would be a scandal!

My "YES" was in relation to Snowdrop's comment on the psychiatrists themselves. Ie that they really should stop accusing us of stuff, when they seem rather over-attentive themselves.

YES!

Wonder would a MP be able to get further??

I'm not familiar with how to do FOI requests, but it might be time to ask: How many patients entering the Bath clinic with ME, ME/CFS, CFS/ME or CFS as their diagnosis on entry, get re-diagnosed with other conditions? And of those, how many are therefore declared free of their initial...

Ho hum... they are coming at us from all angles. By giving as many people CFS/ME diagnoses as possible so they can have lots of people saying - "Oh yes I had ME and now I'm running marathons again". What a ploy! @dave30th I'm sure you've been alerted to this, and I'm sure you also have far...

Either that, or he knows full well the score, and it tweeting such statements in an attempt to demonstrate that he has no guilty conscience on these matters. So he acts as if he believes himself, that way he believes he looks like a "good guy" really. There is no way he can admit out loud...

Not sure I understand your comment. I was wondering if they know full well that their “science” is weak, but still choose to spin it as if it were top rate. I cannot see how they could fail to understand the flaws now so many have been pointed out. Other moves they make clearly suggest they...

This is effective:

Just saw this.

I think as a charity tag line "living death" is not suitable, but if media used it instead of say "yuppie flu" that would help. eg: ME, a disease described by the most severely affected as a "living death",. .. . etc.

And this is where a lot of articles become unstuck. Although the person interviewed might give all the right info, we have to trust that the journo concerned will work the piece from our angle. Often the journalist seems sympathetic, but then goes to the various press sources and comes up with...

Or shorter still: "Living Death Disease". I gave a blog post that scary title once, and it got a huge number of hits. So I agree that it has impact. http://sallyjustme.blogspot.co.uk/2014/08/living-death.html I think it is fine to use for the Mild / Moderate too, because it's scary. I mean...