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It’s confusing. So 9% of the whole cohort had a change from “not working” to “working”. Would this statistic have not looked “better” (from Chalder’s pov) if it had been expressed as the percentage of the “not working” returning to work? Ie the % would have been a higher number. Perhaps that...

This! Also a patient who is connected to other patients can give a wider perspective than simply their own.

Also - would be interesting to know whether the differences observed in the Covid paper were downstream effects, or whether those differences existed prior to infection.

I found this. The Microbiota and Health Promoting Characteristics of the Fermented Beverage Kefir https://www.frontiersin.org/articles/10.3389/fmicb.2016.00647/full Perhaps no great benefit there? Hmmm

So, does drinking kefir help protect me? Or do ingested bacteria have little effect on gut microbiome? Hmmm. Perhaps I need to know more about the bacteria found in kefir!

Sorry just to complete the story, I’ve just remembered the chorus. It went . . . “As she lay between the lily white sheets with nothing on at all!”

The version I learned was “Oh Sir Jasper do not touch me!” Same premise of each verse dropping one more word than the last. And believe it or not, it was sung at a Girl Guide camp fire!!!

Good lump of a bruise today! (2 days post Moderna booster) Otherwise all good.

Yes! I agree! Omission changes everything. We actually had debates about inserting qualifiers in every recommendation, but it was pointed out that this would make the guideline unwieldy (& it would too). It was pointed out that the existence of the other recs should be sufficient to make...

Cherry picking is not in the spirit of the guideline.

This! 100% Having worked nights in a women’s refuge in East Belfast (pre ME), I have met some amazingly resilient women. I shudder to think of any of them being exposed to another whole layer of trauma through this nonsense.

I had my booster yesterday (24 hours past) and so far nothing to report. No aching arm, no falling into a deep sleep afterwards, nothing at all really (so far)! Fingers crossed this holds true in the next few days. Same for my husband. (Though he was wiped out for 24hours following his 2nd...

Ah yes, agree. I read your statement as suggesting trackers added additional bias to simple subjective records. However, I think that a longer period of using a tracker would mean that any increase, caused by some optimistic bias on the part of the patient, would be unsustainable over say a 3...

As I see it, if we can reduce PEM, then we can hopefully reduce the sort of payback that carries a high penalty (compare this to the high interest rates charged on an overdraft by loan sharks). IMO if we can manage our energies to stay with our personal boundaries, then the very high...

This is better than her last response which called the guideline CFS/ME. :)

Adds bias? I would have thought activity diaries would be much more biased no matter how carefully completed. I know I couldn’t find a suitable way of subjectively measuring my activity, and that despite their quirks, I found that a step-counter was MUCH more useful to me in estimating my daily...

Totally agree with a longer time period. Though I think even a month is rather too short. I remember early in my illness trying to “gradually increase” my level of activity and crashing every 6 weeks to a lower level (which after the crash caused a long-term ratcheting downwards of my health...

The whole issue could do with wider exploration. Clinical experience really can’t be unbiased for precisely these reasons. Not many doctors/clinicians recognise their viewpoint for what it clearly must be. Though obviously some do. :) A Quote tweet:

A Tweet that I thought interesting

BPS recipe for normalising a genuine physical problem: Take whatever might be a reasonable complaint of the physically ill, and assert that this “is typical” of whatever your favoured explanation might be! (No justification or evidence required.)