Search results

  1. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    I would be amazed if they didn't.
  2. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Read this over a few times now and it is actually quite realistic and helpful. A bit anemic maybe here and there, but overall nothing I would seriously disagree with. Symptom list is good. This paragraph is excellent and important, particularly the last sentence: Try to manage your activity...
  3. Sean

    News from the USA, United States of America

    'It also renews attention to post-viral illnesses such as ME/CFS,...' I really wish the viral part of that description was dropped from the lexicon. We don't know it is viral. Much safer to say post-infection. 'Personalized treatment, tailored to individual symptoms and immune markers will be...
  4. Sean

    News from the USA, United States of America

    How, given recent events, is this anything less than a cruel bald-faced lie?
  5. Sean

    Trial By Error: A (Satirical) Field Guide to Conducting Biopsychosocial Research in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), 2025

    Very amusing, in a grim kind of way, and like all good satire also an accurate critique of the situation. (n = too many) :laugh:
  6. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    There was a short article by a patient I read many years ago describing the endlessly contradictory suggestions and advice they received from all directions, personal and professional, about what was wrong with them and how they should deal with it. I thought I had a copy but can't find it now...
  7. Sean

    News from the USA, United States of America

    To the surprise of nobody with more than a dozen neurons. We are watching the complete destruction of medical science, and no doubt other sciences too, in the USA, and quickly.
  8. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    This is nuts. Yep. Nothing fundamental has changed. Just the marketing. They are doing exactly what they have always done. This. It is one of the most potent and frequently employed tactics from the BPS – shamelessly making the same claims again and again, flooding the journals, clinical...
  9. Sean

    DecodeME in the media

    Grifters gonna grift.
  10. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    ...significant abuse and online threats directed at Mel Abbott, as well as the negative treatment of some of her clients, after sharing their recovery stories or promoting The Switch programme. That claim that needs very robust scrutiny indeed. Evidence, please, and it had better be good. And...
  11. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    While it remains predicated on the rehab notion of' establishing a baseline' it will fail. If they started with the concept of a ceiling, and how to avoid running into it, they might get further.
  12. Sean

    How would a deficit in processing of physiological signals lead to ME/CFS?

    DecodeME results aside, I agree that almost everything we see or know about ME/CFS, especially clinical presentations, is the downstream consequences.
  13. Sean

    Sweden: Have the ME and CFS clinic in Gothenburg found a loophole to avoid the diagnosis ME?

    They are trying to eradicate the ME and ME/CFS diagnoses, and turn them back into 'fatigue' syndromes, and hence 'functional'. This general trend and desire has long history, starting with the introduction of the CFS name in 1988. Wessely tried to unilaterally change the UK's WHO...
  14. Sean

    “Overdiagnosis is a danger to our patients and the health system” (article in Irish Examiner newspaper by a GP)

    Inappropriate diagnosis is far more of a concern to me. Disease mongering by big Pharma... What about psycho-social pathology mongering by the psych lobby? that is a far more insidious problem, in no small part because it is orders of magnitude more difficult to measure accurately. Which is...
  15. Sean

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    That certainly holds true for me. I have never stopped wanting to have a life, to be active and do stuff, from mundane practical daily tasks through to lofty life goals. If we were just depressed we could not have got anywhere near as much done as we have via forums like this and other means...
  16. Sean

    What the concept of psychosomatic disorders really is

    Yes, I am very much of the view that psychosomatics, certainly in its current form, is just a giant and cruel excuse generating machine for both medicine and broader society. All because they simply cannot say: 'We don't know.'
  17. Sean

    Stable cortical body maps before and after arm amputation, 2025, Schone et al.

    Yep. To the point of not just absurdity, but cruel false hope. It is like how athletic records might continue to be broken, but they are being so by ever smaller margins. They are already down to hundredths of a second (2 decimal places) in most sports, which is already practically meaningless...
Back
Top Bottom