Read this over a few times now and it is actually quite realistic and helpful. A bit anemic maybe here and there, but overall nothing I would seriously disagree with.
Symptom list is good.
This paragraph is excellent and important, particularly the last sentence:
Try to manage your activity...
'It also renews attention to post-viral illnesses such as ME/CFS,...'
I really wish the viral part of that description was dropped from the lexicon. We don't know it is viral. Much safer to say post-infection.
'Personalized treatment, tailored to individual symptoms and immune markers will be...
There was a short article by a patient I read many years ago describing the endlessly contradictory suggestions and advice they received from all directions, personal and professional, about what was wrong with them and how they should deal with it.
I thought I had a copy but can't find it now...
To the surprise of nobody with more than a dozen neurons.
We are watching the complete destruction of medical science, and no doubt other sciences too, in the USA, and quickly.
This is nuts.
Yep. Nothing fundamental has changed. Just the marketing. They are doing exactly what they have always done.
This. It is one of the most potent and frequently employed tactics from the BPS – shamelessly making the same claims again and again, flooding the journals, clinical...
...significant abuse and online threats directed at Mel Abbott, as well as the negative treatment of some of her clients, after sharing their recovery stories or promoting The Switch programme.
That claim that needs very robust scrutiny indeed. Evidence, please, and it had better be good. And...
While it remains predicated on the rehab notion of' establishing a baseline' it will fail.
If they started with the concept of a ceiling, and how to avoid running into it, they might get further.
They are trying to eradicate the ME and ME/CFS diagnoses, and turn them back into 'fatigue' syndromes, and hence 'functional'.
This general trend and desire has long history, starting with the introduction of the CFS name in 1988. Wessely tried to unilaterally change the UK's WHO...
Inappropriate diagnosis is far more of a concern to me.
Disease mongering by big Pharma...
What about psycho-social pathology mongering by the psych lobby? that is a far more insidious problem, in no small part because it is orders of magnitude more difficult to measure accurately. Which is...
That certainly holds true for me. I have never stopped wanting to have a life, to be active and do stuff, from mundane practical daily tasks through to lofty life goals.
If we were just depressed we could not have got anywhere near as much done as we have via forums like this and other means...
Yes, I am very much of the view that psychosomatics, certainly in its current form, is just a giant and cruel excuse generating machine for both medicine and broader society.
All because they simply cannot say: 'We don't know.'
Yep. To the point of not just absurdity, but cruel false hope.
It is like how athletic records might continue to be broken, but they are being so by ever smaller margins. They are already down to hundredths of a second (2 decimal places) in most sports, which is already practically meaningless...
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