Different country (Australia), but similar system (overall).
I got my disability pension in 1989, and had a few reviews in subsequent years, but not for over a decade now. Given that I am in my early 60s and nearing eligibility for the old age pension, and have been on disability pension for...
I am as concerned about the outcome of the forthcoming Delivery Plan as anybody. We have been badly burned way too many times by the authorities and their 'reforms'.
But we do need to hold the bulk of our fire until we see the contents and detail.
Some in the patient community thought the IOM...
Speaking as a lifelong dweller of the steamy tropics, I am unconvinced that heat is the answer, (beyond what is required to keep comfortable during cold weather, of course).
Refreshingly honest.
I am sure a representative from the psycho-behavioural lobby will be along shortly to describe their findings as 'therapeutic nihilism'.
These are not mutually exclusive.
There probably is a significant reduction in CR from the start or very early on. But also a longer-term additional cumulative burden coming from poor quality sleep.
My sleep quality crashed in the very early stages of being sick, and has not improved in the...
My 'CR' has drastically declined over the 40 years I have had ME/CFS, despite doing all the things you are supposed to do (as best I can) to keep the mind working.
I don't think that can be put down to just normal ageing.
Conclusions
Findings from this review indicate the potential of mindfulness and CBT
How many years and studies has it taken to get to this non-conclusion?
Variables with significant (p <0.2) associations to the outcome
That is not what I understand to be the threshold for (statistically) significant.
About the purported aims of the study? Very little. About the competence and integrity of the authors of the study? Possibly quite a bit.
And that non-result was after 8 weeks of intervention.
They got nothing. Another rehab study fails to deliver any meaningful benefit.
Credit to them for using an objective primary outcome measure.
Broadly it is quite good, basically on the right path. But quite a few details are problematic.
It is a major channel, so that is helpful in spreading a more realistic story about ME/CFS.
Somebody should send the authors a link to that appalling Reddit Medicine thread that was posted a couple of days back.
I mean, if they are looking for the primary source of ignorance and the Dunning-Kruger effect among the general population on LC (and ME/CFS), and also for the first place to...
Which is why the BPS club have been concentrating more on 'perpetuating' factors. Almost any post-onset features (real or imagined) can be spun as contributing to perpetuating health problems.
the exact etiopathogenesis and pathophysiology of FI in DGBI remain unclear.
So why such definitive "gut-brain" framing and therapeutic recommendations?
This is just marketing fluff for the psycho-behavioural rehab industry.
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