Search results

  1. Sean

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Different country (Australia), but similar system (overall). I got my disability pension in 1989, and had a few reviews in subsequent years, but not for over a decade now. Given that I am in my early 60s and nearing eligibility for the old age pension, and have been on disability pension for...
  2. Sean

    #ThereForME campaign / Building an NHS that’s there for Long Covid and ME

    I am as concerned about the outcome of the forthcoming Delivery Plan as anybody. We have been badly burned way too many times by the authorities and their 'reforms'. But we do need to hold the bulk of our fire until we see the contents and detail. Some in the patient community thought the IOM...
  3. Sean

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Speaking as a lifelong dweller of the steamy tropics, I am unconvinced that heat is the answer, (beyond what is required to keep comfortable during cold weather, of course).
  4. Sean

    An audit of 12 cases of long COVID following the lightning process intervention examining benefits and harms, 2025, Arroll et al

    THIS! It is unbelievable that any clinicians or researchers take this obviously cruel drivel seriously. But here we are, some do. 'quacktitioners' :D
  5. Sean

    Interventions for Long COVID: A Narrative Review, 2025, Ivlev et al

    Refreshingly honest. I am sure a representative from the psycho-behavioural lobby will be along shortly to describe their findings as 'therapeutic nihilism'.
  6. Sean

    Association of chronic fatigue syndrome with premature telomere attrition (2018) Unger et al

    And a mentioning whole lot of other things as well.
  7. Sean

    Cognitive reserve moderates the effect of COVID-19 on cognition: A systematic review and meta-analysis of individual participant data, 2025, Foreman+

    These are not mutually exclusive. There probably is a significant reduction in CR from the start or very early on. But also a longer-term additional cumulative burden coming from poor quality sleep. My sleep quality crashed in the very early stages of being sick, and has not improved in the...
  8. Sean

    Cognitive reserve moderates the effect of COVID-19 on cognition: A systematic review and meta-analysis of individual participant data, 2025, Foreman+

    My 'CR' has drastically declined over the 40 years I have had ME/CFS, despite doing all the things you are supposed to do (as best I can) to keep the mind working. I don't think that can be put down to just normal ageing.
  9. Sean

    Review Quality of Life With Ehlers-Danlos Syndrome/Joint Hypermobility Syndrome: A Systematic Review of Psychosocial Interventions 2025 Bohling-Davis et al

    Conclusions Findings from this review indicate the potential of mindfulness and CBT How many years and studies has it taken to get to this non-conclusion?
  10. Sean

    Risk factors for fatigue severity in PASC: A prospective controlled cohort study of nonhospitalised adolescents and young adults, 2025, Selvakumar MD

    Variables with significant (p <0.2) associations to the outcome That is not what I understand to be the threshold for (statistically) significant. About the purported aims of the study? Very little. About the competence and integrity of the authors of the study? Possibly quite a bit.
  11. Sean

    CDC and #MEAction: ME/CFS Resources for Medical Students - Flashcards

    It is not a bad question, and is heading in the right direction. But, as @Utsikt says, it still has quite a way to go to being safe and accurate.
  12. Sean

    Opinion Abolish the Tilt Table Test for the Workup of Syncope! 2020, Kulkarni et al

    That was my first thought. They are are measuring the wrong variables, not that the test itself is bogus.
  13. Sean

    #ThereForME campaign / Building an NHS that’s there for Long Covid and ME

    Yes, seems prudent to hold off demanding funding until we see what it will be paying for.
  14. Sean

    Post-Hospitalisation COVID-19 Rehabilitation (PHOSP-R): A randomised controlled trial of exercise-based rehabilitation, 2025, Daynes et al

    And that non-result was after 8 weeks of intervention. They got nothing. Another rehab study fails to deliver any meaningful benefit. Credit to them for using an objective primary outcome measure.
  15. Sean

    « Exercise Actually Makes Chronic Fatigue Syndrome Worse» - Video by SciShow

    Broadly it is quite good, basically on the right path. But quite a few details are problematic. It is a major channel, so that is helpful in spreading a more realistic story about ME/CFS.
  16. Sean

    Identifying and mitigating the public health consequences of meta-ignorance about "Long COVID" risks, 2025, Motta et al.

    Somebody should send the authors a link to that appalling Reddit Medicine thread that was posted a couple of days back. I mean, if they are looking for the primary source of ignorance and the Dunning-Kruger effect among the general population on LC (and ME/CFS), and also for the first place to...
  17. Sean

    The relationship between the phenotype of long COVID symptoms and one-year psychosocial outcomes: an exploratory clustering analysis 2025 Nakamura+

    Which is why the BPS club have been concentrating more on 'perpetuating' factors. Almost any post-onset features (real or imagined) can be spun as contributing to perpetuating health problems.
  18. Sean

    Feeding intolerance in adolescents with disorders of gut–brain interaction 2025 Person et al

    the exact etiopathogenesis and pathophysiology of FI in DGBI remain unclear. So why such definitive "gut-brain" framing and therapeutic recommendations? This is just marketing fluff for the psycho-behavioural rehab industry.
Back
Top Bottom