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  1. Sean

    How is paediatric CFS/ME diagnosed and managed by paediatricians? An Australian Paediatric Research Network, 2014, Knight et al

    That is my reading of it. the paediatricians in the current study commonly reported the engagement of other disciplines, particularly psychologists and physiotherapists, Interestingly, most paediatricians reported recommending GET as a common part of their practice. Despite the demonstrated...
  2. Sean

    Protocol Serial Paediatrics Omics Tracking in [ME] (SPOT-ME): protocol paper for a multidisciplinary, observational study..., 2024, Armstrong+

    No doubt the psychosomatic club will spin any outcome to suit their purposes. But the rest of the world might not be as accepting of that fairy tale as they once were if a biological explanation is found, and especially if a related treatment is indisputably producing genuine cures, or major...
  3. Sean

    Protocol Serial Paediatrics Omics Tracking in [ME] (SPOT-ME): protocol paper for a multidisciplinary, observational study..., 2024, Armstrong+

    Fair question. In fairness, it has the potential to cut the other way. If a biological mechanism is found for ME/CFS, and it correlates strongly with scores on 'somatisation' check lists, and especially if both resolve with the same biological treatment, then that is very good evidence for...
  4. Sean

    Involuntary movements: Seizures, tremors, tics, twitches, myoclonus

    Which could be interpreted as non-pathological compensatory or displacement movements. (Not sure of the correct terminology.) I occasionally get a slight rhythmic side-to-side shaking of the head when tired or dealing with a high level of PEM (like today, after an hour in the dentists chair...
  5. Sean

    Fibromyalgia syndrome—a bodily distress disorder/somatic symptom disorder? 2025 Häuser et al

    To judge the appropriateness of distress requires a God-like view of the human experience and condition, which no individual or group can ever possibly have. It is an absurd and reckless claim in the first instance, and every other instance.
  6. Sean

    Fibromyalgia syndrome—a bodily distress disorder/somatic symptom disorder? 2025 Häuser et al

    Exactly. If one was looking for 'perpetuating psycho-social factors' in conditions like ME/CFS, this iatrogenic crap and its consequences (including for accessing material support) is among the most potent of them all. And the most unnecessary. Problem, of course, is that it reflects very...
  7. Sean

    Donating and fundraising by people with ME/CFS - discussion thread

    The prevalence numbers are going to be flaky until we get more accurate and precise diagnostic criteria.
  8. Sean

    Behaviour Assessment System for Children, BASC - a discussion

    The blindingly obvious problem being, of course, that this kind of list of 'symptoms' is exactly what you would expect to see in a child who has a serious physical problem that is undiagnosed, and being misdiagnosed and mistreated as a mental health problem. The appropriate safety factor, the...
  9. Sean

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    And it could be virtually gaslighted and ignored.
  10. Sean

    News from South Africa

    so we can’t parade — but we can lounge in style. :D
  11. Sean

    Autonomic cardiac function in children and adolescents with long COVID: a case-controlled study, 2024, Delogu et al

    The parasympathetic system may be healthy and functioning normally, but has an excessive load being placed on it by a pathology elsewhere in the body, which is causing it to be overstimulated. In which case further stimulating that system is not only unlikely to produce a benefit, it might be...
  12. Sean

    ‘Thanks, but no thanks’: The public's response to engagement with NHS Talking Therapies – a salutary tale? 2024 Scott

    Yep. That is its purpose, which is why any evidence against its actual efficacy and relevance is ignored.
  13. Sean

    What do we mean by a diagnosis like ME/CFS?

    That is my sense of it. PEM is the consequence of whatever is driving the problems underneath. In the same way as somebody who has been stabbed and is bleeding onto the kitchen floor is not afflicted by blood on the kitchen floor syndrome. They are afflicted by a stab wound causing external...
  14. Sean

    Pacing up - why it's as harmful and unevidenced as GET

    I would like to see the end of the idea that specific dedicated exercise is some separate thing from daily life. The artificial separation of exercise from normal life is one the problems with exercise advice, as it removes the meaning or value from the activity, and for many is an inefficient...
  15. Sean

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Indeed. Where is the real mental and moral pathology here? There is (was?) an American psychiatrist who eventually gave up on the profession, after coming to the view that most psych patients would get more therapeutic benefit from having a nice pet dog/cat.
  16. Sean

    Miranda Hart - British comedian

    Yes, not all publicity is good.
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