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  1. Sean

    Open personal letter to the trustees of the UK ME Association, December 2024

    Combine angry Aussie koala with polite English restraint. :thumbsup: Nice work, @Trish.
  2. Sean

    Article in the i: The long Covid ‘treatments’ to avoid, 2024, Clare Wilson with Garner and Busse

    The one thing you can never get those who have seen the light to do is shut up about it.
  3. Sean

    Should we change our name: 'ME/CFS Skeptic'?

    ME/CFS Science Scrutiniser ME/CFS Science Auditor –––––––––––– I would definitely keep this tag line immediately underneath whatever name you end up with: "Bringing clarity to ME/CFS research findings"
  4. Sean

    Article in the i: The long Covid ‘treatments’ to avoid, 2024, Clare Wilson with Garner and Busse

    Doctors are warning that some desperate patients are getting stuck in a quagmire of pseudoscience that has developed around the condition. Then proceeds to promote the worst of it from doctors.
  5. Sean

    Explaining persistent physical symptoms to patients in general practice: can tests to measure central sensitisation add value? 2024, den Boer et al

    That is exactly what is going to happen. It will delay diagnosis and treatment of other diseases, which is going to increase morbidity and mortality for patients. Did they discuss that blindingly obvious risk certainty? It is incredibly reckless and callous of them. All just so they can having...
  6. Sean

    Should we change our name: 'ME/CFS Skeptic'?

    ME/CFS Science Analysis ? Accurate and neutral, if not particularly exciting. Seeing how much deference is paid to formal honourifics in certain quarters, how about Lord Sir ME/CFS Skeptic ?
  7. Sean

    School absenteeism as a predictor of functional gastrointestinal disorders in children 2024 Tersteeg and Borowitz

    Biopsychosocial means whatever the person using the term wants it to mean.
  8. Sean

    Thesis Hope for recovery after prolonged and unexplained fatigue, 2024, Andersen (Norwegian)

    Unfortunately, because they are selling something that people in economic and political power really really want – pseudo-scientific excuses for shitty medical and public policy – they are being taken very seriously, and I don't expect that to change any time soon.
  9. Sean

    Review The association between body image and psychological outcomes in multiple sclerosis. A systematic review 2024 Eccles et al

    Yes, there needs to be a distinction drawn between unrealistic and realistic views of our bodies. I don't dislike my body, as such. Apart from being a few kilos overweight and ageing it had never been a general issue for me in that sense. For example, I am well on my way to normal male-pattern...
  10. Sean

    Review Key Pathophysiological Role of Skeletal Muscle Disturbance in Post COVID and ME/CFS: Accumulated Evidence, Scheibenbogen Wirth, 2024

    This is a very important point. I have not lost the use of muscles nor muscle strength, broadly speaking, especially for short term limited use. But I have lost the capacity to use them consistently and repeatedly at a normal healthy day-to-day level without paying a high price for it. I have...
  11. Sean

    What is the future of Covid?

    Sadly, our capacity to learn from history is limited. As soon as the lived memory of something dies out we start getting complacent about it. Same thing is happening with the memory of WW2 and all its horrors. Almost all those who were direct witnesses to it, particularly participating adults...
  12. Sean

    Should we change our name: 'ME/CFS Skeptic'?

    I voted for a change. Mainly for the way skeptic is placed in the name, as @Simon M noted. Currently it reads like being skeptical of ME/CFS itself. Otherwise skeptic is a perfectly good word to use. But it is a marginal decision, with pros and cons either way, and unlikely to change much about...
  13. Sean

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    But by some miracle the main players in the psychosomatic club and their chosen successors are not, and are entitled to infinite benefit of doubt and influence over the proceedings.
  14. Sean

    Is it worth getting an air purifier for my constant rhinitis?

    I have persistent rhinitis and do a nasal rinse every day, with boiled water plus non-iodised salt and sodium bicarb. (1/8 tsp salt & 1/16 tsp bicarb in 200ml water.) No problems with it, and it works well for me. Have to say it has improved significantly since my cat died. He was not the...
  15. Sean

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    I think they are throwing whatever they can get their hands on against every wall in the house in defence of the whole psycho-behavioural project in the hope that something sticks. Which it appears to have at Cochrane.
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