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From the above link: :rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl:

Pah! Yet another variable! :yawn: Also discriminates against those poor plebs (like me :thumbsup:) who don't have expensive iPhones :thumbsdown: but have to rely on Android. :android: I would think that it's much easier to use an ap to record stuff than faff around with charts. :arghh: :eek...

I wish that the videos could at least be transcribed. I find it very difficult to take in much information via video, suspect I'm not the only one. Rubbish TV is a different matter, as you can sort of fade in and out of it (especially if you've seen it before, which most TV I watch these days...

Fred Nye was the lead at the time. I got a rather panicked phone call from him about it. It's so long ago I can't remember the year. Been discussed on PR. Appears it was 2005. And interesting letters here too, though not dated. Never understood Dr Nye, he diagnosed me in 1992, and was very...

That large blue cockerel was in Trafalgar Square. I even saw it! (went to see an exhibition at the National Photographic Gallery) Thought I had photos, but if I did they didn't make it to Flickr. Will have to check my old computer when go home. It was removed on 17 Feb 2015. Now the pair of...

Just what UK Gov want - to be able to walk 67 metres further than baseline definitely takes you out of the possibility of obtaining the Mobility component of PIP. https://www.turn2us.org.uk/Benefit-guides/Personal-Independence-Payment-(PIP)-Test/Move-around#guide-content

It's a very long time since I read this book, but I do remember Edwards quoting several verses from the Bible, one of which was "pick up thy bed and walk". He misdiagnosed one of my friends with ME, later following a private MRI (she was desperate) it turned out she had MS. During the time of...

Oh dear. :emoji_rage: Yes it's like ME as we don't have a test. I just love how the doctor :emoji_japanese_goblin: says how hard it must be for someone like Kirsty who is "so busy and very active"! :sick: Yeah, sure, the rest of us plebbie ordinary people just piddled around in our so-easy...

:rolleyes: :( :banghead: :sick: :emoji_face_palm: :rolleyes: :rolleyes: :rolleyes:

Mine arrived yesterday, did the test husband does on any new non-fiction book - open a few random pages and read a paragraph. Looks like it will be a really interesting read, and is refreshingly free of unexplained jargon. :) I'm not reading it today as it's my 70th birthday :eek: so I'm...

Ordered the book. Arrives on 30th August. Really looking forward to reading it! :) Oh, I followed Brian Hughes on Twitter, within a minute he followed me back and also re-tweeted a thing I'd posted on The Case against Mars Colonisation from the Grauniad. So he seems to be a friendly person. :)...

I thought this was interesting as it shows Wessely not really answering questions from Mental Health Today about the Mental Health Act review. :rolleyes: https://www.mentalhealthtoday.co.uk/news/in-our-right-mind/simon-wessely-ect-is-in-my-own-advance-directive There are further examples, do...

I'm tired and jaded by many of the so-called ME Charities. I support ME Research UK and MEA. In the past I've gone on demonstrations outside Dept of Health, and then gone on to lobby my MP. Given how I was treated by IiME I've not supported them and never will. I don't trust this new so called...

There was something about Lyme Disease on BBC Breakfast, I think yesterday. Interviewed John Caudwell. Can't find anything on catch up I'm afraid.

Very sorry to hear about your friend's son and wife's sickness. I hope they make a fast recovery with no further problems. I read about this on ProMed Mail. Latest seems to indicate that norovirus may be one of the pathogens involved. I'm copying the latest post that I got about this below - I...

The link from AfME website to the draft guidelines stuff is the wrong link! Sheesh, and they expect ME patients to find the right link? (though it's easy to find it from MEA website)

Had long chat with husband way back when this first came up, and was going to apply. But since then Life Happened. This week was stranded in Bwlchtocyn when needed to be home to visit Dentist for ongoing treatment. Not well enough to travel. Made me re-think. Suspect this kind of thing happens a...

This message to those who propose CBT and GE for ME/CFS patients. :sick: :bawling: :arghh: :walkingdead :grumpy: :ill: :eek: :rolleyes: :thumbsdown: :wtf: :banghead: :mad: :facepalm: :grumpy: :emoji_rage: :emoji_japanese_goblin: :emoji_japanese_ogre: :emoji_imp: Aaaaaaarrrrrrrggggggghhhhhhh...

Interesting review of Jason Luty! :eek: It seems he's left the Bradgate Unit now.

Congratulations @andypants. I suspect you are going to have an immense amount of fun renovating, though it's very exhausting too. We've been in our new (to us) home about 6 years now (I think - never noted the date we moved in!) and we've still to finish unpacking! :banghead: We did get in...