A US Lyme forum has picked up the story. Not a lot of posts yet, but still interesting. If anyone cares to see how the other side of the coin sees the debate:
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/137911
@Dechi, my infectious disease doctor wants me on it but I deferred for the time being until more results come in (plus I've just come off a long torturous abx protocol; I need a break). The excitement - in terms of humans trialing it - stems from a study done by Dr. Ken Leigner. I respect...
Are you suggesting it should not be important to patients that their disease be labeled as accurately as possible, and without mistakes that would lead to mischaracterization of their disease? Do you consider it being important as being "super sensitive"?
ETA: In the context of the last 15 or...
Ok. Then arguably little excuse for referring to our disease as chronic fatigue?
Different types of tests, if I recall. In a way, apples and oranges. Also, I've lost track of the set of tests in Igenex's portfolio. I personally have never used them. I know Western Blots, so, I lean that way...
@ahimsa , I'm right there with you. I've written too much today and my brains are addled and I cannot tell if what I mean to impart with word, I am actually imparting anymore. I was just being silly. :) Do not change a thing!
CD 57 abnormalities are not restricted to Lyme, so it reduces this metric utility. This is like CXCL13 in CSF of Lyme patients: there seems to be a coorelation, but it's not proven to be specific to Lyme.
A couple of observations: First, chronic Lyme is a poisoned diagnosis. Discard it. The question is does a patient have Lyme disease.
Second, the Western Blot and the C6 and other ELISA's only test for exposure. That's it. It is very very rare to know if a patient's Lyme is active or not...
They'd have to show something on their labs. If their labs show nothing suggestive of Lyme exposure, then imo they should not be diagnosed with Lyme. Too many other possible culprits should go into the differential diagnosis.
In the UK the C6 is the lab of choice by the NHS. I prefer the...
Cannot - or should not - extrapolate from n=1. There are doctors projecting their biases through potential misdiagnoses in many medical realms. It's just unfortunate for patients when it happens because it can provide fodder for self-interest groups (eg BPS) whose goals do not necessarily align...
@Dolphin , you really trust any researcher who refers to ME/CFS as chronic fatigue? :) Also, do you know he's not referring to Armin labs? He's likely referring to IgeneX which uses two bands banned by the CDC because they are allocated for vaccine use, and that these two bands are the most...
One way to get a feel for its prevalence is by checking out canine incidence. This is one method by which scientists are mapping Lyme's spread North deep into Canada. I would think they'd have these numbers throughout most of Europe, obviously including the UK.
Yeah, I'm going to have to call foul on that one. If it's true, it is true on an exceptional basis. What do you imagine one of the main points of this article is all about? It's that symptoms of Lyme and ME/CFS frequently overlap. Lyme has many symptoms that can be confused with many diseases -...
Right, @Medfeb , and there's the rub. According to CDC criteria, these Lyme patients still qualify as having active Lyme, ie, they are CDC Lyme compliant IgG positive on a Western Blot. Everything after that is innuendo and speculation, i.e. the post treatment qualifier which assumes Bb has been...
Where in the world did you get that idea? People who thought they had Lyme never had symptoms of Lyme?
What? Of course chronic Lyme has to be late stage Lyme - it's definitional. And most people with chronic Lyme don't present with symptoms of late stage...? Which symptoms? You mean classic...
I must confess this study always struck me as a bit over-the-top obvious. Kinda cool at first glance, but once you get past who the authors are (no small feat), and really read the study, all it basically says is - and I am paraphrasing liberally - we can tell the difference between sick people...
Not wholly accurate, but I agree with the gist. Some people know a campaign of misinformation and mischaracterization has been going on against Lyme patients who are not cured. Indeed, some stalwart anti-Lyme peeps have gone so far as to declare - and propagandize - that chronic Lyme patients by...
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