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  1. Wyva

    Immunometabolic changes and potential biomarkers in CFS peripheral immune cells revealed by single-cell RNA sequencing, 2024, Sun et al

    Abstract The pathogenesis of Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) remains unclear, though increasing evidence suggests inflammatory processes play key roles. In this study, single-cell RNA sequencing (scRNA-seq) of peripheral blood mononuclear cells (PBMCs) was used to...
  2. Wyva

    Encyclopedia Britannica website: entry on CFS

    The article has been updated. There is still bad info on exercise therapy etc. They have changed the name to ME/CFS though.
  3. Wyva

    Was there a gap between trigger and onset of your ME/CFS?

    Mine started with EBV, I had no health issues before. I was ill with mono for 3 weeks. I still tried to live a normal life during the first week (even tried to work out) but it just got worse and worse, so eventually I had to stay in until I "recovered" because I was too ill. After three weeks...
  4. Wyva

    News from Southeastern Europe

    I have posted a Hungarian article about ME/CFS in the Visegrád thread (the article is translated to English in my post). There is an ethnic Hungarian doctor from Targu Mures/Marosvásárhely (Romania) talking about the disease in it, so I'm sharing the link to that thread here too, maybe someone...
  5. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    There was an article a couple of days ago in Nők Lapja, a well-known women's magazine about ME/CFS. It is a mixed bag, starts pretty badly but then it talks about PEM, pacing, orthostatic intolerance, things that are basically never mentioned on the Hungarian internet (neither by the media, nor...
  6. Wyva

    Review Chronic Fatigue Syndrome: Diagnosis, Treatment, and Future Direction, 2024, Graves et al

    Just skimmed through it to see what it says about GET for example.
  7. Wyva

    Review Chronic Fatigue Syndrome: Diagnosis, Treatment, and Future Direction, 2024, Graves et al

    B. Sue Graves • Mitsu Patel • Hailey Newgent • Gauri Parvathy • Ahmad Nasri • Jillene Moxam • Gurnoor S. Gill • Vivek Sawhney • Manish Gupta Abstract Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a complex, chronic condition marked by persistent, debilitating...
  8. Wyva

    Stuart Murdoch (of Belle and Sebastian)

    I only saw Trainspotting as a teen, so not very recently but I remember there were some pretty disgusting (drug-related) scenes in it and my first thought was maybe he somehow wants to show the ugly or shocking side of the disease or similar. But I'm probably wrong as this is the paragraph...
  9. Wyva

    Increased hunger during PEM crash

    I can't really eat a lot in a bad crash but I simultaneously crave carbs like crazy, especially sweet things, pastry etc. It feels like my body is telling me to get more energy right now.
  10. Wyva

    NHS: GP surgeries; privatisation; physician associates

    I think it is probably a US vs Europe thing. Here people go to medical school directly after secondary school too but is 6 years (plus specializing afterwards).
  11. Wyva

    Review The effect of massage on patients with chronic fatigue syndrome: A systematic review and meta-analysis 2024 Li et al

    Maybe about a year ago someone in my group, a recovered covid long hauler asked me about this. She was very interested in Chinese medicine and recently started learning massage as a hobbi (maybe she even said she had found massage helpful, I don't remember now). She asked me if she could offer...
  12. Wyva

    Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey, 2024, Wood, Unger+

    Press release: COVID may trigger chronic fatigue syndrome “Our results offer a snapshot in time, and find that in 2022, 14% of people who had ME/CFS-like illness developed it after COVID,” said senior author Jacek Skarbinski, MD, a research scientist with the Kaiser Permanente Division of...
  13. Wyva

    United Kingdom: News from #There for ME

    Posts moved from United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media ______________ The Times: Patients with severe ME at risk of starvation, doctors say Nearly 200 health professionals have written to the health secretary saying that patients with the...
  14. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Ádám Dénes neurobiologist researcher was asked to comment on a long covid study on the channel RTL (link to video). I've mentioned Dénes several times here, he is one of the (neuroimmune) long covid researchers here but he also seems to be as unaware (or ignorant) of ME/CFS and post-viral...
  15. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    An article in the women's magazine WMN with pediatricians (resident doctors) Réka Garai and Vivien Herczeg. I occasionally post here conference abstracts from Hungarian pediatricians on long covid, these conference abstracts are from these doctors (my very last post just above this one for...
  16. Wyva

    2024 Stanford MECFS meeting

    And it is "amazing".
  17. Wyva

    Resting-state neural dynamics changes in older adults with post-COVID syndrome and the modulatory effect of cognitive training and sex, 2024, Nagy et

    The participants of the study were older but they were not hospitalized during acute covid. They had a mild or moderate infection.
  18. Wyva

    Resting-state neural dynamics changes in older adults with post-COVID syndrome and the modulatory effect of cognitive training and sex, 2024, Nagy et

    Boglárka Nagy Andrea B. Protzner, Balázs Czigler & Zsófia Anna Gaál Abstract Post-COVID syndrome manifests with numerous neurological and cognitive symptoms, the precise origins of which are still not fully understood. As females and older adults are more susceptible to developing this...
  19. Wyva

    News from Southeastern Europe

    Saw this on Facebook from the Croatian ME/CFS/Fibromyalgia/Dysautonomia patient org. Facebook translation (I guess ME/SKU is ME/CFS?): "Dear all, We invite you to the meeting and congress of Slovenian, Serbian and Croatian societies for ME/SKU, which will be held on the 14th. September in...
  20. Wyva

    Unique genetic and risk-factor profiles in clusters of major depressive disorder-related multimorbidity trajectories, 2024, Gezsi et al

    I'm mostly sharing this because there have been a couple of articles about this study here in Hungary in the media in the last couple of days. And there was one article on a health website that said that the health conditions with the strongest association with depression are CFS, fibro, IBS...
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