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Some good news: The governmental healthcare website Egészségvonal has updated its informational page on ME/CFS (written by the National Public Health Centre) after I sent them a letter pointing out in detail how much it differs from the current literature. Although I could still find a...

An article that summarizes the 1st Interdisciplinary Consensus Meeting on post-viral conditions in Austria. Here is the Google translated version:

Hyperbaric Oxygen Therapy Conference in Hungary Context: Nikolett Szolnoki, who offers this service, has been promoting HBOT as treatment for long covid in the media for a year or two now. The conference also took place where her private clinic operates. Key points: - They are (Szolnoki et...

From March but I only discovered it today (Google translated): ME/CFS: Neurology Society invites consensus-building meetings The Austrian Society of Neurology (ÖGN) invites you to an interdisciplinary “consensus conference” on April 19th on the topic of the multisystem disease ME/CFS. The aim...

From the Polish ME/CFS website I follow: Google translation: Everything indicates that this summer (2024) we will happily see the first clinic in Poland dealing with the clinical diagnosis and management of ME/CFS as part of NIGRIR - Warsaw, Spartańska. The department is still being prepared...

It's K-pop, so Korean. I remember every once in a while we get some pretty clueless papers from Korean researchers, usually confusing ME/CFS with chronic fatigue. If she has PEM and that is why she may relapse, then maybe that can help raise some awareness of the actual disease there. Just...

I expect more to come from this team about physical rehabilitation of pwLC and the power of sports. Great blog post though. Are you going to write to the journal, @dave30th ? Sounds like it.

One of the post-covid studies funded by the Hungarian Academy of Sciences. There a few mentions of PEM:

Abstract Previous studies found that regular physical activity (PA) can lower the risk of SARS-CoV-2 (COVID-19) infection and post-COVID-19 condition (PCC), yet its specific effects in young women have not yet been investigated. Thus, we aimed to examine whether regular physical activity...

Actually, in the "Related information" section there is a PDF titled " Notice to Members". It is dated to January 2024. Maybe this is the update? It seems to be a summary. I'll copy the 2024 part here:

It says that the status has been updated. The status currently says "closed". I guess that is the update?

Just saw this on the Facebook page of the only Polish ME/CFS website I found a couple of years ago. It seemed to be dormant back then but this is today's FB post (Facebook translation): After a while, the website me-csf.pl is back! We start a big-small comeback with the discovery of a YouTube...

What is covid doing in the brain? Just recently there was an event in Hungary called the Brain Research Week, where the general public could attend talks by researchers about various brain-related topics. The effects of covid on the brain was one of these topics and the lectures of two...

They must be suffering from effort preference.

Letters Why ME/CFS is still so poorly researched and treated Readers respond to George Monbiot’s article on the treatment and attitude of the medical profession to the debilitating condition These are the responses in the Guardian so far. Among others, you can read one from Charles Shepherd but...

George Monbiot kicks ass. Are we expecting some typical BPS style response in the Guardian? Something signed by the BPS "all-star" crew, sans HM Sir Lord Professor Simon Wessely, of course. To be honest, I kind of would like that to happen, hoping that it will give more incentive to Monbiot to...

Well, famous psychiatrist Hannibal Lecter did have his own psychiatrist even before his incarceration, so... :emoji_shrug: :joy:

Abstract Background In the Netherlands, the prevalence of post COVID-19 condition is estimated at 12.7% at 90–150 days after SARS-CoV-2 infection. This study aimed to determine the occurrence of fatigue and other symptoms, to assess how many patients meet the Myalgic Encephalomyelitis/Chronic...

Whoops, forgot to add the link, it is added now!

CDC study, mentions of ME/CFS: A substantial percentage of patients with fatigue remain ill for many months with an illness similar to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) (5), an unexplained syndrome sometimes seen after infections that is characterized by functional...