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Abstract This study aimed to estimate the incidence rates of post–COVID-19 fatigue and chronic fatigue and to quantify the additional incident fatigue caused by COVID-19. We analyzed electronic health records data of 4,589 patients with confirmed COVID-19 during February 2020–February 2021 who...

Interesting, I also believe I had a sort of double infection. The first one was just some nasty cold, it gave me a cough that kept going away and coming back, it was really annoying but I kept going on with my life. Then I recovered from that and a while later EBV knocked me out and I've never...

"Unveiling hope" Oh, the irony :grumpy:

So by this logic, all the scammers out there for any disease can say their product is a cure, while also putting out a disclaimer that it is not intended as a cure and it is OK then? Is that really a reasoning the advertising authority would accept?...

So: after taking a bit better look: This is part of the ID-DarkMatter-NCD project, coordinated by Thomas Vogl from the Medical University of Vienna, Austria and the Biological Research Centre from Szeged (Hungary) is part of the project. The latter's systemic immunology research group is...

HUF 3 billion research is being launched in Szeged on the relationship between infectious and immunological diseases (Google translated article) "Among the diseases selected for detailed analysis are the post-Covid syndrome, an inflammatory autoimmune disease affecting the central nervous...

Sadly, this website doesn't seem to be working any more. It was quite useful for me as a reference when someone posted about some brain retraining type therapy and all the miraculous recoveries in my group. It was a great website! (Btw if someone is in a similar situation to me: apart from this...

Someone just explained to me in my group that you need to believe in a therapy (eg specifically this one, among many others) in order for it to work, otherwise it won't and the people who don't recover from ME/CFS are just not trying hard enough, they give up and also fail to understand the...

Do we know why they have this one-year requirement? I mean they have a control group that only gets placebo, so I don't think they are planning to attribute the effect of the drug to the potential early natural recoveries. Do they believe the condition is a lot less likely to be reversible after...

Earlier this year I posted an interview with the principal investigator, Ádám Dénes in the Visegrád regional thread, you can find it here. He is one of the researchers who got funding from the Hungarian Academy of Sciences for post-covid research.

Full title: Infection-induced vascular inflammation in COVID-19 links focal microglial dysfunction with neuropathologies through IL-1/IL-6-related systemic inflammatory states Abstract COVID-19 is associated with diverse neurological abnormalities, which predict poor outcome in patients...

Two abstracts from the 32nd International Congress of Clinical Neurophysiology (ICCN) of the IFCN, September 4-8, 2022, Geneva, Switzerland. The authors are neurologists at the National Institute of Mental Health, Neurology, and Neurosurgery, Budapest. TH-284. Dysautonomia in patients...

There have been some articles about this (I guess a press release was sent out). Here is the one from the Associated Press with some relevant quotes: The Centers for Disease Control and Prevention’s number is larger than previous studies have suggested, and is likely boosted by some of the...

Key findings Data from the National Health Interview Survey In 2021–2022, 1.3% of adults had myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The percentage of adults who had ME/CFS increased with age through ages 60–69 and then declined among those age 70 and older. White...

Agreed. In my own sphere I've seen maybe three people who think CBT or GET helped them, all post-viral. Two had health issues only for a shorter period, so probably they just had the self-limiting post-viral version. One is a long-term patient, who swears by CBT and strongly believes that...

Oh wow. I thought there were some weird elements in the article when I read it in the morning but it is not rare to find things we don't like/agree with in articles with pwME or even some researchers sometimes, as seen here in the forum, so I assumed it was just one of those cases. o_O

ME patients: narrative, victories and challenges for people with hidden disabilities in Egypt Ayman Youssif, the first in Egypt and the Middle East to obtain a PhD in Invisible Disabilities from New York University, discusses recent achievements and aspirations for those with his condition.

From the Facebook page of the Serbian ME/CFS patient org (Facebook translation): Ladies and gentlemen, We can proudly announce that our first basic goal has been met. On our initiative with the patronage of the Ministry of Health, and with the invaluable support of the organizer of the first...

Google Translate (original): Symposium on complications following viral infections with a focus on Long COVID and ME/CFS Start of the event November 20, 2023 10:00 a.m End of the event November 20, 2023 5:30 p.m Venue Hybrid event: University of Veterinary Medicine Vienna (Veterinärplatz 1...

I have a friend who was born with dwarfism. She is tiny and her condition also affects her legs in such a way that although she can walk, she can do so with great difficulty and she is extremely slow. Not someone you can easily walk around with. She is also bisexual, Jewish and a hardcore...