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Thanks. (I wonder why I haven't seen this. This was published by the Hungarian Academy of Sciences and I follow two (!) of their repositories. Maybe there is a delay in uploading but I'm also overall not satisfied with those repositores regardless of this.) There's a lot to unpack here. If...

Every once in a while peptic ulcers are mentioned here as a parallel to ME/CFS. Peptic ulcers were seen as something caused by stress and/or bad dietary habits until the discovery of the bacterium Helicobacter pylori in the stomach by two Australian doctors, Barry Marshall and Robin Warren...

Article from Serbia. Politika seems to be one of the major news sites in the country. Chronic fatigue as a consequence of corona Not everything is factually correct in the article but the president of the country's ME/CFS association is one of the people talking about ME/CFS. Google translate:

I just thought I would share my own n=1 story, which shows that you can have some really bad hypermobility problems without actually having hEDS or similar. I had badly formed bones in both of my knees, which only became apparent in my teens, as I was growing. What happened is that my kneecaps...

Discussion moved from ME Epidemiology - prevalence, peak ages of onset and gender ratio Question: what do you think is a reasonable time that passes between an infection and ME/CFS onset? For some people the ME/CFS symptoms don't start straight away after an infection and there seems to be a...

I think is is great what's happening in the UK, but it looks like these things still also need some luck to happen, someone in a key position having a close relative with the disease. I don't want to detract from anyone's work at all who has obviously put plenty of effort into this, but I think...

Yes, I actually mentioned that at the end of the original post, but I think I should have added it somewhere where it is easier to notice. :) Edit: Now I've changed the original translation in the post to make this more clear. :)

One of the long covid studies the Hungarian Academy of Sciences is funding is this, as mentioned previously: - Training-induced compensation of cognitive decline in post-covid patients (Zsófia Anna Gaál, Research Centre for Natural Sciences) I saw it today that they are recruiting now and they...

Here is the full programme of the upcoming webinar "ME/CFS and post Covid in the Balkans" organized by EMEA:

I saw this today on the Slovenian ME/CFS, fibro etc Facebook page. They will talk about the diseases on a regional radio station for ME/CFS Awareness Day. Google translate:

A few days ago a Hungarian network of private clinics organized a series of short lectures on long covid and I watched the two videos about the neurological manifestations. One speaker couldn't participate due to illness, so it was a different neurologist (Dr Anita Mező) who gave the...

So now that everyone is checking their platelet count :) : Mine is very consistently right in the middle of perfect. I do have severe fatigue as part of my symptoms.

This is from the Czech Republic. I started following the Facebook page of their ME/CFS patient organization and these are some recent posts from there (with Facebook's translation to English): (In short: looks like they managed to get the Czech committee that develops guidelines to approve...

I understand. To be honest, when I feel better then I am very concise and to the point. Then when I'm getting worse I start to find it difficult to focus my thoughts in that same way and start to get meandering and explain everything in a much longer text. I'm trying too hard to get my thoughts...

Thank you for all the wonderful messages so far, they are great and very useful. For those who still may be planning to write a similar message: I can still accept messages today and tomorrow, but starting from Monday I won't accept more. So if they would like to write one, today or tomorrow is...

Yes, of course. I'm saying that when she said CFS patients without PEM can benefit from HIIT, even that is not correct, since the study wasn't about HIIT but about moderate level continuous exercise vs moderate level interval training. (This is because they had to match the workload of the two.)...

I've found the paper about HIIT and CFS she was referring to. We have a thread on it: Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome (2016) Sandler, C; Llloyd, A; Barry, B From the paper: This doesn't actually sound like HIIT, it is not intense enough...

Ehh, what is she talking about? HIIT is brutal, that's the point. I'm not even sure it is a good idea for beginners as it is a perfect fitness regimen to make someone lose motivation quickly because of how rigorous and demanding it is. It is for fitness freaks like I was and this was one of the...

There was a presentation by a German doctor called Andreas Stengel from the University of Tübingen at the international long covid conference of the Hungarian Academy of Sciences. He is very definitely a BPS proponent. I wrote a very short summary and you can also watch the video there if...

The second part was less interesting to me. However, we still weren't left without some first class BPS bullshit but this time it came from a German guy called Andreas Stengel from the University of Tübingen. Just in short: among the predictors of post-covid fatigue he mentioned previous...