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So today is the international long covid conference of the Academy (posted at the top of this page) and I'm watching it online. So far it is much better than last time but not perfect. The first section was the introduction basically, a brief summary of long covid in general. It wasn't so...

The Academy is launching a post-Covid national research program Previously I wrote about the two rounds of post-covid studies that already won funding from the Academy (the topic was post-covid everything, including economic, social impact etc of the pandemic, so not just long covid but most...

Not exactly what you asked but I think it is still interesting and related: There was someone in my own group who was diagnosed with ME/CFS after a parvovirus infection. She said she went through hell but recovered after three years. Then she caught covid and long covid and although the...

"Further, research into other post-viral syndromes such as myologic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has shown a heightened risk for individuals who have experienced stressful life events,29 and there is substantial overlap in the symptoms of long COVID and ME/CFS.30,31...

Full title: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries and experiences in the month prior to COVID-19 infection and the development of long COVID and specific long COVID symptoms Abstract Background Long COVID is increasingly...

And the difference is...?

Thanks Andy. Unfortunately I don't have Twitter (it is not so popular here) and Twitter seems to restrict access for unregistered visitors (usually I can only view a few things). Also, it's better not to have too many messages for both my and the readers' sake and I think the ones here will be...

Just a quick reminder that this project is still accepting messages this week. :)

I don't really have a definite time scale yet. I can translate these bit by bit, gradually, so if someone shares their message a bit later, it is fine too, it won't be too much extra work probably. I think I'll stop accepting new messages for this project at some point but I'm sure it will be...

Abstract Background Long-term health consequences following acute SARS-CoV-2 infection, referred to as post-COVID-19 condition or Long COVID, are increasing, with population-based prevalence estimates for adults at around 20%. Persons affected by Long COVID report various health problems, yet...

Thank you, these are great! :) I'm still looking for more, so bumping the thread up. :)

Thanks. Yes, I've actually seen it, just didn't have the energy to read through it yet. :) Yes, it is true, there isn't any kind of guidance or protocol and that is one of my arguments when I send letters about adapting the NICE guideline to people in key positions. The task here is not to...

There is a "too long, didn't read" version at the end. So my problem is the same as last year: I wanted to write an article for ME Awareness Day based on how pwME in Hungary are affected by the disease, how healthcare, social services etc treat them, how this affects their family and social...

This is my nightmare. I'm in year 6 and I've had hypersomnia since the beginning. I sleep very well all night, then wake up in the morning, have breakfast, drink my coffee, read some news, then often go back to bed to nap more because of the literal "unrefreshing" sleep (this usually means...

Fatigue due to long COVID-19 requires slowing down Scheibenbogen and dr. Martina Lukas explain PEM and pacing and staying within your energy limits. Edit: I just realized that this is a Turkish news site actually. ”Shortness of breath, muscle aches and heart palpitations can also worsen if you...

195th General Assembly of the Hungarian Academy of Sciences - The long COVID syndrome: Lingering illness after the pandemic Date: 5th May, it can be followed online. Programme: My comment: some of you may remember that they organized a long covid symposium a few months ago. It was mostly...

Edit: Countries that are included in this thread in alphabetical order: Albania, Bosnia and Herzegovina, Bulgaria, Croatia, Cyprus, Greece, Kosovo, Moldova, Montenegro, North Macedonia, Romania, Serbia, Slovenia I used the broadest definition of SEE here but there are overlaps with other...

I feel you. I think my family still treats me and my disease relatively well, compared to some of the stories I saw in my own ME/CFS group. They never disbelieved me for example or told me to just get myself together or thought the problem to be psychological. But it doesn't really go beyond...

News: the 2nd Annual Flat Earth Award by the Skeptic Society goes to Gábor Varga, the guy who pushes c-peptide as a cure-all drug (now advertised as a "cosmetic spray" for legal reasons after constant battles with the advertising authority). Well done, basically he is the No. 1 quack in the...

Leronlimab and the pharmaceutical company CytoDyn who investigates it don't really have a good reputation: CytoDyn Hit with Two Clinical Holds as Optimism Appears to Wane "In May 2021, the FDA issued an unusual public scolding of the company, accusing it of misrepresenting clinical trial data...