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cannot read for health reasons, but nuremberg might be a rough guide on "i was following orders". eichmann needed a criminal trial. "i was just saying 'sleep with the fishes'" [@jaimes] perpetrators also need criminal trials. separately, i implore the m.e. community as follows: please start...

i believe our community is not always on the same page about the disease, and this is best illustrated by miscommunication over severity levels. here is an example: for any definition of severe that i use, it does not make sense to test this. === apologies for theory-ladenness in the...

> I'm really surprised this is not a much bigger issue in our community. To be honest, I feel like we're all sitting around waiting to finally win the treatment lottery when that's not going to happen for a long time. Yet people need much better management NOW. this. not to dispute the need...

has @#meaction considered a program of connecting with ibs charities, and charities representing every other population that is being attacked? @JaimeS? for example an email list that charities are subscribed to that has petitions that can be signed [at their option] + press kits in response...

a caution: === I tried low-dose naltrexone (LDN) for a month, but had several episodes of prolonged severe nausea, vomiting, delayed gastric emptying, sweating, diarrhea, and worse IBS. In one episode, I needed to vomit for something like 7 hours but could not. Strange regurgitating, but no...

to me, the question is not whether the program's internal rules require a given hurdle to be jumped (staying in hospital, for example). it is more whether such rules are /always/ completely necessary in every case, for the mission of the program. i.e. can a reasonable accommodation be made...

thank you, #meaction! can we get [1] a right of reply, similar to or identical to this letter, [2] and/or a separate article with the same status as the original article, at reuters and the major media that printed it? also, has anybody looked at, for example, whether uk hate speech laws apply...

[hi, i'm a 4 year old child. i am in class. i am raising my hand.] i agree. why has a-4-year-old-can-understand-it's-wrong conflation of terms not driven perpetrators out of town? why is this not considered failure of the entire academic industry? same with casual conflation of "placebo...

might want to specify the tests? they might change or vary. sjogren's antibodies ss-a(ro) and ss-b(la) both negative. i don't know what distinguishes ss clinically from being part of my highly multisystem, highly multisymptom meicc++++++++ presentation. same question with mcas, eds, sle, etc.

there are semi-industrial mouthwashes on amazon. maybe one of them is mostly fluoride? similar search needed here. i have just developed trigeminal neuralgia and i believe dental issues have something to do with it [even if only triggering]. i want fluoride [or at least i think i do]...

welcome to the forum, @Diane O'Leary, and thanks for professionally engaging rationally with the topic of m.e. we need more and more professionals in many disciplines to do that. this growth in sufficiently thoughtful and assiduous professionals needs to go visibly exponential. early adopters...

@JaimeS, not relevant, but didn't at least one known actor, such as sw, ms, or pw, state in public that biomedical research should not be done, with a similar excuse? perhaps to uk parliament or so? this stuff is closing around a lot of disease populations FAST. it reminds me of...

this. [edited per thoreau.]

https://www.meaction.net/2016/06/04/ron-davis-errors-metabolism/

not new but many people do not know about it: http://www.richardwebster.net/hysteriarevisited.html also: http://www.richardwebster.net/freudandcharcot.html http://www.richardwebster.net/freudandhysteria.html powerful writing. [edited. as with any relevant material, where possible, it is...

https://www.ohchr.org/en/professionalinterest/pages/remedyandreparation.aspx

Booth, G. (1948). Psychodynamics in Parkinsonism. Psychosomatic Medicine, 10, 1-14. http://dx.doi.org/10.1097/00006842-194801000-00001 Abstract Parkinsonism is a syndrome with a specific personality pattern characterised by marked impulses toward action, motor activity, and industriousness...

http://uk.businessinsider.com/r-exclusive-science-journal-to-withdraw-chronic-fatigue-review-amid-patient-activist-complaints-2018-10

now seems like a good time to post this. had it for a while but seid etc. are popping up. has the following idea been ruled out? === pem, pene (meicc) and exertion intolerance (iom) seem to refer to exertion causing crashes. sometimes it is claimed that if you do not have it, then you do not...

medical professional and/or computer script: let's begin a i have a hangnail. what do i do? b is this rash a concern? c i've had a cough for a day now [cough on pwme] a let's get back to my hangnail d [pwme] i am going to be unable to go to the bathroom unassisted for weeks because i came here...