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I assumed SW would be hosting, but yes it is Roger Kirby. Simon must have other engagements!

Moved posts - Royal Society of Medicine in Conversation - interviews Next Wednesday: https://www.rsm.ac.uk/events/philanthropy/2021-22/phq14

https://www.bacme.info/civicrm/event/info?id=15 BACME networking event: A Conversation About....NICE

I have just noticed the Queen Mary PACE trial page has been removed or moved. This page was full of info on PACE and had links to various documents, such as trial materials. https://www.qmul.ac.uk/wiph/research-projects/current-projects/projects/pace-trial.html This page was active a few...

https://me-pedia.org/wiki/List_of_deaths_caused_by_myalgic_encephalomyelitis_or_chronic_fatigue_syndrome

I remember coming across this Memorial list https://www.ncf-net.org/memorial.htm Obviously, I can't vouch for its accuracy, and the caveats discussed above apply; that is, this is a 'died with' list, though I have no doubt some on the list died due to ME.

Exactly this. Just an extention of what has been going on in our community for decades now.

It seems like the covid version of Myhill's mitochondrial test score: take lots of different measurements, then combine them into some sort of score to get a totally meaningless number that apparently indicates the level of severity.

There's a thread on Patterson here: https://s4me.info/threads/usa-incelldx-dr-patterson-new-lab-service-offering-cytokine-tests-to-covid-longhaulers.20434/ Wouldn't trust him an inch.

Just bumping this. The PSP is keen to get applications for the final workshops from carers and healthcare professionals (in addition to ME patients). You can apply for take part in the workshops until Tuesday 11th January, here: https://www.psp-me.co.uk/take-part/

If anyone has a PDF of this paper, could you please send it to me! Thanks. EDIT: Obtained.

You could contact the ME Association to see if they have heard of any other alternative.

I'm not certain, but I suspect not. I think everything goes through GP clinics, except pop-up and walk-in centres.

I am thoroughly confused about the booster roll-out. I was put in Group 6 back at the start of the year and had my second dose in early May. I only got a text about booking my booster last Friday—7 months after my second dose. Have they got rid of the groups now and are just rolling out the...

Chalder coming up with the idea for this paper:

I'm tempted to think less incentive to hand out anti-depressants is a good thing, but if the alternative is six months on a waiting list for CBT...perhaps not!

This was the survey Dr Phil Hammond shared on Twitter saying it was a pre-guideline survey showing that GET was not really widely used in clinics, until I told him it was actually a post-guideline survey, and that the pre-guideline survey (BACME's previous survey of clinics, from 2018) evidenced...

The expected guideline publication date at the time of submission was 21 April 2021 (announced June 2020). Yes, it can take months and months—and occasionally years—to publish (I've been there myself), but, for a 3-page perspective paper, submitting 8 months prior to the expected guideline...

Oh. I actually missed the 2020 in the first date! A paper does not usually sit with a journal for a year, but the fact that they give the original submission date means that it probably wasn't totally pulled as the authors tried to keep up with developments at NICE. I suspect it may have been an...

Yeah, this was more a 'response' to the draft guideline than the final—probably prepared over summer.