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This is among the best works on very severe ME, depicting its tragic nature in frank language with sharp brevity. The most striking aspect of this thread is how he writes about her almost as if she has died. The world needs to understand how incapacitating ME is, and the enormous burden it...

We have a similar rule in the US. Government-funded research must be made open-access within 12 months, and in 2026, it will have to be immediately. If my tax dollars go towards research, you bet I want to be able to read it.

Tak-242 or Resatorvid is an experimental drug that, as far as I can tell, hasn't been approved anywhere.

Simon Wessely was more dismissive of women than the Iranian government. Let that sink in.

Adam, your videos are exemplary.

Transcript from your local fox: According to Dr. Nath, they have large volumes of research to publish from the ME/CFS intramural study, which is promising. The GWI study is already going which is excellent.

Shoulda published it on 4/20.

It's obvious that the author doesn't understand what ME is. If he did, he'd know that ME was also a severe disease. This is why ME should never be referred to as chronic fatigue syndrome. It confuses everyone, even scientists. It's not tiredness. It's a devastating disease of exertion intolerance.

What are these people smoking? April 2020 was fun and relaxing, like a vacation.

We could titrate doses while remaining blinded, at least in theory. Let people change their nominal dose but not tell them whether it's real or not.

I'm used to viewing everyone in the ME universe as a saleman and fast-talker. If they're not blabbing for money, they might just be blabbing out of pride. Event totally honest people deceive themselves.

That's not an admission of defeat, just that the first LC treatment won't be a cure. Never is the initial version of a technology perfect and medicine is no exception. Apparently they also asked what "toxicities" patients would be able to tolerate. My answers to those questions could be...

Ughhhhhh......

Did you come up with this before or after getting buzzed?

Still, they're making progress. At last update, just over half were asked for samples. Thus, we're likely around 10,000 samples.

I believe this is a useful line of research because I have an interest in low-level neuroinflammation and ME.

Those studies aren't half of pwLC. They're half of pwLC who make it to an LC clinic, making them much more likely to be severely ill.

Absolutely. There's plenty of examples of government mismanaging projects, but I think LC research is more vulnerable to this because it's not taken seriously.

Wealthier people are more likely to have time to read about long Covid and thus understand what it is.

It's utterly disgusting that an organization that supports vaccines refuses to take post-infectious disease seriously.