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Can't agree more with you @Hutan and @Simon M As you said, it is dishonest toward patients and prevents progress and I would add discredits all the good work done by others by giving ammunitions to ME skeptical doctors. It is so easy for them to believe that all research is bullshit and that...

Trial By Error: My Letter to Two More Mahana GI Advisors http://www.virology.ws/2020/02/11/trial-by-error-my-letter-to-two-more-mahana-gi-advisors/

Posts discussing MEA history and structure have been copied or moved to this thread: ME Association staffing and structure

Preprint here (for those who can't access Sci hub) https://psyarxiv.com/g9eu3

https://journals.sagepub.com/doi/abs/10.1177/0956797619897588?journalCode=pssa

As a reminder, there was this study on handgrip in 2018 by Nacul et al.: Hand grip strength as a clinical biomarker for ME/CFS and disease severity https://www.s4me.info/threads/hand-grip-strength-as-a-clinical-biomarker-for-me-cfs-2018-nacul-et-al.6612/

http://www.virology.ws/2020/01/24/trial-by-error-cbt-and-irritable-bowel-syndrome/

I have never had problems with uncertainty, not before nor since becoming ill. Quite the contrary, I've always hated false certitudes, I was the kind of person who likes to consider something from different angles. So I have no lesson on uncertainty to receive from someone who sticks to...

it's the fatality rate of contaminated people. I guess if the epidemy were to spread and the mortality rate stayed stable, as not everybody would be contaminated, the death toll would be less severe.

Journal retracts 30-year-old paper by controversial psychologist Hans Eysenck I am longing to see this for another trial... https://retractionwatch.com/2020/01/21/journal-retracts-30-year-old-paper-by-controversial-psychologist-hans-eysenck/

So a study on a single patient, having diabetes + "sadness" (depression?) whose outcomes are evaluated on a depression scale, becomes (in the title) a study on diabetes. Seriously?

That's the problem, nobody knows exactly what depression is (and it may encompass very different things), but too many people do not, like you, acknowledge this and have strong claims about what they believe depression is.

Yes, their explanations are a simplification of a complex combination of factors interacting to create depression. This article about a woman whose particular genetics prevents her from feeling sadness and pain is an interesting counterpoint, I think...

See this post by @Woolie where she gives some references. https://www.s4me.info/threads/freud-was-a-fraud-a-triumph-of-pseudoscience.1569/#post-26559

A few things about FNDs It seems there are indeed patients with no diagnosis that present with commonalities: - seizures of a different type than epilepsy - tremors where distracting the patient can make the symptoms diminish - gait disorders where people can't walk, but are able to run. My...

Yes, I know. I meant in ME/CFS :)

Yes, I agree, but we've heard of LDN for a long time and we shouldn't be there now. We should see published trials by now.

Case report...

Is this linked to the disease process, or could it be a consequence of being sedentary?