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Posts relating to the definition of Bodily Distress Disorder (BDD) and Bodily Stress Syndrome (BSS) have been moved this thread.

Very interesting. If physical function as described by patients correlates with real capacities, it confirms the suspicion that those who didn't do the test where not doing well ; and the results of the 6mWT would probably be worse if the whole cohort had done it (specially in the GET arm).

When Chalder could just teach them not to think they are fatigued...

The exact opposite could be said...

I just came across this paper criticising CS. Although the authors do so to defend a very straight psychiatric view of FSS, some of their arguments against CS are interesting: https://journals.sagepub.com/doi/abs/10.1177/2167702618781804

You cannot present that kind of lists like it's all proven facts with only one trial, this is misleading, it has to be replicated.

What strikes me is that their model for depression is as simplistic and unevidence based as their CFS one. And how they confuse causes with consequences. This is ridiculous. How can that be taken seriously?

Ok, thanks, that's clear now, the aim is not patients wellbeing, but expenditures cut.

One could say he knows what he's talking about...

The question was meaningless too for ulcers, autism, arthritis patients because psychiatric care did wonders for them, they all recovered, and never suffered because of psychiatric treatments. Thanks to all contemplative minds for their priceless contribution to science. Edit for clarity

Thanks (irony inside) Dear Peter, for acknowledging that your Oxford CFS definition is just shit, after claiming for years that CBT/GET is the only way to go, when it helps (at best) a small subset of patients that you never cared to try to identify. Edited to withdrew useless remark.

Compelling concrete evidence that unblinded trials with subjective outcomes where people are told to think positively are not measuring anything about people's functioning. Thanks @lunarainbows for your testimony, it's very interesting and revealing and also saddening indeed.

How awful... I'm so sorry. Their answer is so telling in that it shows how unwilling they are to change their mind about their theories when confronted with facts. They'll twist reality to make it fit their view. They can't consider they're wrong, and no proof of them being so will be taken into...

So what? What does a scale like this tells about "functional" symptoms? Nothing, as long as it has not been tested against non "functional" symptoms, to see if there is a different pattern or not. This won't be done, because many times, when a comparison with other diseases is done, it shows...

How are you doing all those who tried to go keto?

I think the problem here is overdiagnosis, not the diagnosis per se. One of my friends just got a hEDS diagnosis by a doctor (an MD, not a naturopath) while he does not fit at all the criteria, he said to the doctor that it seemed unlikely to him, the doctor answered that all his patients, with...

https://www.nature.com/articles/s41562-019-0652-0

Part 2 is available: https://solvecfs.org/hope-for-the-future-a-patient-study-participant-perspective-on-the-nih-intramural-post-infectious-me-cfs-study-part-2/