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  1. Sly Saint

    Flexibility exercise training for adults with fibromyalgia Cochrane Systematic Review 2 Sep 2019

    https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD013419/full
  2. Sly Saint

    Is M.E. an acquired form of Mitochondrial Myopathy?

    What are the symptoms of mitochondrial myopathy? https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Mitochondrial-Myopathy-Fact-Sheet
  3. Sly Saint

    London School of Hygiene and Tropical Medicine - LSHTM 120 keynote lecture: Alumni on the frontline of innovation 2019

    full details here: https://www.lshtm.ac.uk/newsevents/events/lshtm-120-keynote-lecture-alumni-frontline-innovation now on Youtube: oh the irony
  4. Sly Saint

    New bacterial strain discovered in England and Wales linked to scarlet fever: article Sep 2019

    full article here: http://www.imperial.ac.uk/news/192830/new-bacterial-strain-discovered-england-wales/
  5. Sly Saint

    United Kingdom: The Royal Society of Medicine

    Modernising the Royal Society of Medicine: We Speak to its President-Elect September 13, 2019 full article here https://www.medscape.com/viewarticle/918344?src=130919_expert_kirby_onc&faf=1
  6. Sly Saint

    Blog, the Mighty "Dear Doctor: What Not to Say to Me"

    full title Dear Doctor: What Not to Say to Me and Other Fibromyalgia Patients although the author has ME/CFS full blog here https://themighty.com/2019/09/things-doctors-say-fibromyalgia-patients/
  7. Sly Saint

    Canaries in the coalmine: Why Marcus Sedgwick is writing about Chronic Fatigue and illnesses we all need to understand better - 11 Sept 2019

    full article here https://www.booktrust.org.uk/news-and-features/features/2019/september/canaries-in-the-coalmine-why-marcus-sedgwick-is-writing-about-chronic-fatigue-and-illnesses-we-all-need-to-understand-better/
  8. Sly Saint

    Forward-ME Group Minutes - 10th July 2019

    http://www.forward-me.org.uk/10th%20July%202019.htm write up at MEA https://www.meassociation.org.uk/2019/09/forward-me-royal-medical-colleges-role-encouraging-clinicians-to-listen-to-patients-11-september-2019/
  9. Sly Saint

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    as mentioned by @Mithriel on a different thread: quote from Dr Lily Chu. "I wish to re-emphasize that post-exertional fatigue is not equivalent to post-exertional malaise. As described in the NAM report, PEM is not only increased fatigue following activity but also involves exacerbation of other...
  10. Sly Saint

    Perrin Technique

    have found a copy of Raymond Perrins Thesis. In it he mentions a number of 'trials' but I can't find any literature (apart from his) about them. his thesis https://pdfs.semanticscholar.org/2723/be174b00626663577f4526f8ff91851262cd.pdf eta:it is very long, but there are a lot of photos in it.
  11. Sly Saint

    Hope 4 ME & Fibro Northern Ireland event (Wed 4th September 2019): New Frontiers in M.E. -Transforming Patient Safety & Care

    thread here: https://www.s4me.info/threads/fundraising-manchester-uk-primary-care-research-exploring-trauma-distressing-experiences-following-medical-encounters.10770/#post-191438
  12. Sly Saint

    UK - New chief medical officer/government adviser appointed, 2019

    Physical activity guidelines: UK Chief Medical Officers' report https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/829841/uk-chief-medical-officers-physical-activity-guidelines.pdf so it's GET for everyone now eta: this was done by Dame Sally...
  13. Sly Saint

    News from Germany

  14. Sly Saint

    Article: York-based GP service Doc-OneStop put patients at ‘risk of serious harm’ 7 Sept 2019

    https://www.yorkpress.co.uk/news/17887122.york-based-gp-service-doc-onestop-put-patients-risk-serious-harm/
  15. Sly Saint

    Biomarkers of intestinal barrier function in multiple sclerosis are associated with disease activity. 2019, Camarra-Lemaroy,Silva,Greenfield,Liu et al

    https://www.ncbi.nlm.nih.gov/pubmed/31317818 scihub https://sci-hub.tw/10.1177/1352458519863133
  16. Sly Saint

    New Yorker: A Town for People with Chronic Fatigue Syndrome

    the whole 'history' in the article is imo very 'US centric' and a bit distorted; as though there was no history/name for the disease before its 'appearance' in the US. But this 'rewriting' of ME history started a while ago and is ongoing. Even with the resurgence of using the name M.E. often it...
  17. Sly Saint

    Online Program for School Nurses - Learn how ME/CFS keeps youth from attending school

    for reference; two podcasts she did a while ago https://www.s4me.info/threads/on-the-air-two-podcasts-on-me-with-amy-mooney.4442/
  18. Sly Saint

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    this is something that appears to be on the increase generally in the NHS. It is a bit odd that those wanting parity for Mental Health issues are seemingly unconcerned with who actually treats patients in so much as they do not appear to have to have any specific medical qualifications.* As...
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