What are the symptoms of mitochondrial myopathy?
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Mitochondrial-Myopathy-Fact-Sheet
Modernising the Royal Society of Medicine: We Speak to its President-Elect
September 13, 2019
full article here
https://www.medscape.com/viewarticle/918344?src=130919_expert_kirby_onc&faf=1
full title
Dear Doctor: What Not to Say to Me and Other Fibromyalgia Patients
although the author has ME/CFS
full blog here
https://themighty.com/2019/09/things-doctors-say-fibromyalgia-patients/
full article here
https://www.booktrust.org.uk/news-and-features/features/2019/september/canaries-in-the-coalmine-why-marcus-sedgwick-is-writing-about-chronic-fatigue-and-illnesses-we-all-need-to-understand-better/
http://www.forward-me.org.uk/10th%20July%202019.htm
write up at MEA
https://www.meassociation.org.uk/2019/09/forward-me-royal-medical-colleges-role-encouraging-clinicians-to-listen-to-patients-11-september-2019/
as mentioned by @Mithriel on a different thread:
quote from Dr Lily Chu.
"I wish to re-emphasize that post-exertional fatigue is not equivalent to post-exertional malaise. As described in the NAM report, PEM is not only increased fatigue following activity but also involves exacerbation of other...
have found a copy of Raymond Perrins Thesis.
In it he mentions a number of 'trials' but I can't find any literature (apart from his) about them.
his thesis
https://pdfs.semanticscholar.org/2723/be174b00626663577f4526f8ff91851262cd.pdf
eta:it is very long, but there are a lot of photos in it.
Physical activity guidelines: UK Chief Medical Officers' report
https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/829841/uk-chief-medical-officers-physical-activity-guidelines.pdf
so it's GET for everyone now
eta: this was done by Dame Sally...
the whole 'history' in the article is imo very 'US centric' and a bit distorted; as though there was no history/name for the disease before its 'appearance' in the US. But this 'rewriting' of ME history started a while ago and is ongoing. Even with the resurgence of using the name M.E. often it...
this is something that appears to be on the increase generally in the NHS.
It is a bit odd that those wanting parity for Mental Health issues are seemingly unconcerned with who actually treats patients in so much as they do not appear to have to have any specific medical qualifications.*
As...
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