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We know they are looking at letting you “try” work for a period without losing benefits. However, you can do some work on benefits and have your benefits reduced/wage taken into account (say if you were part-time). My concern is more that (like PIP) if you’re moderate or mild you will just be...

In fairness, it was the same trust but different clinic who Pooh poohed Visible,that was the ME (Infectious Diseases) service. IDK where LC has been yeeted to.

There might be a bit of an issue with the NHS and/or Social Care not doing what you’d expect, hence lots of “removing barriers to work” whilst glossing over the “how am I supposed to function, eat, wash and dress” part.

It’s the spin which is galling “disabled people want to work and are being shut out” well that will be true for some. As I cited earlier, the biggest offender regarding Disability Discrimination EmploymentTribunal cases is ….the DWP. So maybe Charlie can have a word with them for starters…

To be devils advocate, he was describing the medical model and telling people (possibly wrongly) that the medicine treats the disability or something. I think what he was trying to describe was a very basic type of physical disability I.e. if you’ve no legs then you get a wheelchair=problem...

I received my £150 winter fuel letter this weekend!

This was one of them https://assets.publishing.service.gov.uk/media/6762b502ff2c870561bde779/UA-2024-001023-PIP.pdf I use this site https://pipinfo.net/ NB this might be overwhelming if you’re not familiar with the law or PIP, for me I worked in court and had a little bit of experience, I...

I assume that there should be “some” continuing effect because both contain a GLP-1 receptor agonist. Wegovy was always the slower losses/less losses overall when compared in trials though.

Very soon I’ll be evaluating the difference between Mounjaro and Wegovy / tirzepatide and ozempic

I do the same but I do it ahead of time, then still need extra time! They don’t have to give actual reasons for their decisions though. I literally cited case law last time.

Honestly just tell them you’re unwell and need an extension, I always do that, it’s fine. If anything it should help!

Advice here https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/fill-in-form-pip/3-prepare-and-cook-meal/ I would say you should do a lot of research and join Benefits&Work if you can afford the £20, PIP is a different language to English and...

Can Ijust say that I’m in the Peter White study as someone who didn’t have ME, according to Peter White who cited Oxford Criteria. However, numerous other specialists disagree, citing evidence of PEM in Peter’s notes of his assessment of me. Also my dna was used in DecodeME. What I’m saying is...

I see that successful PIP claims and appeals are dramatically down, according to benefits and work. I maintain my suspicions of “secret” rules behind the scenes. Whilst I have not been assessed, at my tribunals it’s very clearly an exercise in “how to disregard” certain evidences. All of my...

I think they slightly changed the category names as well

I’d be looking for something in his life that he wanted but couldn’t achieve and turning it back on him!

I had the CBT of old, as an accompaniment to GET, the CbT was telling you to do GET. So basically I used to just lie because I thought it was nonsense, unscientific and unhelpful. “Why yes, I did walk an extra 5 minutes per day and I do feel better for pushing through!”

I have fatigue and fatiguability, but I agree with your point “stamina” which is how I usually explain limitations to others “I wouldn’t have the stamina to chop and cook carrots/I don’t have the stamina to go outside every day” etc

I don’t have any science behind my belief, just that I feel my energy is more consistent, and so I can do more, but I also can easily overdo it as the usual signals like hunger, dizziness don’t come. I still very clearly have ME, just “better managed”. I also sleep a lot more on the Mounjaro on...

Exciting!!!!