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It reminds me of when some Britain First/BNP far right party erected a sign in memorial to a girl who was run over and killed by a guy who wasn’t British. They did it for clout/attention and the girl’s family were disgusted her name and memory was being used to promote something she and they...

Posted to Sarah Boothby’s LinkedIn post regarding the #JusticeforME project she is involved in. Paul just stopping by to let us know he has empathy, NICE [206] is rubbish and a link to Oslo Consortium I have the biggest shudders. My Ick has overflown.

What is he doing posting on her Linkedin! He is something else, using #JusticeforME to promote Oslo Consortium. I will post further on his thread.

Isn’t this just his opinion? Is it in the News section?

I think that what’s going on legally means that language will be very moderate. This isn’t being written as a call to activism, it’s a legal challenge. They clearly want the DHSC to acquiesce rather than go through a judicial review. I can understand their approach. Personally I’m very tempted...

They are mounting legal challenges on areas of the ME Delivery Plan where such challenge is possible, I thought?

I think a meta-analysis of all heart rate studies to see whether Workwell make well-founded claims would be good I think a meta-analysis of “PEM prevention/mgmt studies” would also be useful. The question relating to both, thanks to @Sasha for raising it, is there science behind the assertions...

I can only speak to myself but my heart rate jumps up when I go upright, and stays up until I rest. To get it to do that when lying down I would need to be told something devastating and extremely upsetting. The more I do, the easier it is for my heart rate to go too fast. So if I went out...

Don’t you turn up here with “logic” and “reason” /s

I found this am sure we had a thread on it https://www.robots.ox.ac.uk/~mosb/public/pdf/3535/Aitken%20et%20al.%20-%202024%20-%20Smartphone-based%20monitoring%20of%20heart%20rate%20variability%20and%20resting%20heart%20rate%20predicts%20variability%20in.pdf

I think that if you look at the workwell foundation info, they are claiming that keeping heart rate low leads to less PEM. The document is here and there are only two studies cited. They refer to the 2 day CPET test. https://workwellfoundation.org/wp-content/uploads/2023/01/HRM-Factsheet.pdf I...

I mean it hurts to bend my legs afterwards and they burn and seize and are stiff.

This is the references from Workwell’s guidance

Wow I get lactic acid buildup from having a shower

I can go over it by drying a dish. It’s all relative. I’d imagine if I was severe/very severe I’d go over it if someone started banging around or told me sad news.

If I recall correctly, Visible data was used by someone and they're claiming they can “predict” crashes. Maybe Visible themselves, or Putrino? Whatever it was, over a year ago, I wasn’t convinced and I like my Visible a lot. Personally I agree with the above- it broadly shows you want is...

I know a few men who are more like the “ADHD in Women” I doubt there’s a difference, probably just that a certain ADHD type was ignored until it became clear, was seen in women first just like the hyper-cant sit still type was recognised in men (and thought to be all that ADHD was for a time).

Sometimes if I have the time and energy, I like to let my brain run riot and bounce around, half-thinking about 5 unrelated things at once. Writing half a note, thinking of something, writing another note, reading the notes back and not even remembering them. Other times having a “crash”is...

You may not be a fan but I like the little cartoon slides people make on Instagram, see examples below. They are good for prompting areas to think about. It was the “finishing people’s sentences” for me! I can’t help it. I hate doing it but I still do it! Also I read ADDitude magazine online...

Your answers align with what I was thinking…the ADHD usually in Women is the Attention Deficit part, or Hyperactive Attention. It’s much more related to executive functioning issues. If you are fairly intelligent you will have learned what is expected of you, and found ways to “make it happen”...