I find the 'ignore' function really useful, to mute the parts of the forum that discuss psychosomatic stuff and certain practitioners of it. So I can go and look at those threads if I feel I want to know something, but they're not always in my eyeline and popping up on the 'Recent Posts' lists etc.
My first thought was that it's a shame the petition title is so bland; it might have got a lot more signatures if it was something punchy like 'Stop classifying ME/CFS as a psychiatric condition'.
But then again, I can't imagine it would have got a different response from Elsevier if it had...
Dropout and spontaneous recovery rates are relevant, but the much bigger problem with this "audit" is that self-reports of improvement due to LP can't be taken at face value, because LP teaches participants to misreport. Self-reports would have to be checked against objective outcomes, and this...
"We told sick people that if they ever want to recover, it's crucial that they say they've already recovered. Then we asked them if they'd recovered and they said they had. Checkmate, critics!"
I was interested until I read that!
The images suggest a much more continuous monitoring, so are there different versions of the device? (I may well have misunderstood)
A report on the state of NHS admin and how it affects care.
https://www.kingsfund.org.uk/insight-and-analysis/long-reads/lost-in-system-need-for-better-admin
I hope they hurry up and replace this ministerial post with an AI chatbot. It will generate equally clueless nonsense but we won't have to pay its salary and expenses.
Thanks! It would be so interesting to know what happens to blood flow and oxygenation during activity - I guess we're quite a way off having the tech to see that.
I hope he'll acknowledge that there are many people with other stories for their recoveries - I got better because I took these expensive supplements! because I got acupuncture and reiki and crystal healing! because I realised I'd never really been ill at all! because the people at my church...
On the other hand, there are people who don't get vaccinated because they don't believe Covid is dangerous (for people like themselves), so if they go on to have LC-type symptoms they'll be less likely to attribute them to Covid.
When they say there were improvements in the treatment group but choose not to mention whether the control group also improved, do we take that to mean the control group also improved?
Can someone refresh my blurry memory on something in this study? The much-hyped "effort preference" finding is based on differences in activation of the temporo-parietal junction in the (small numbers of) pwME and healthy controls in the button-pressing reward test. Did they also look at TPJ...
but the Discussion says:
... so who knows what's what.
Looking at the graphs, some of them are basically flat lines from week 1 to 16, while in others the score for week 14 is about the same as week 1 but then there's an uptick right at the end at week 16 (maybe the subjects were happy that...
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