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  1. Sean

    bodysymptoms.org: Postlaunch evaluation and update, 2025, Saunders et al

    Power, glory, income, sense of purpose, saviour complex, etc. You know, the usual bag of motivations. I don't think it is any great mystery. The much more important and disturbing question is how have they been able to so easily get away with what is in fact a fairly straightforward case of...
  2. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    Well said. It is so short, obvious, and unremarkable a list, isn't it. The contrast couldn't be starker.
  3. Sean

    bodysymptoms.org: Postlaunch evaluation and update, 2025, Saunders et al

    Patients had wised up to traditional psychobabble, so they needed some new marketing terms, and went for 'neuro' based stuff.
  4. Sean

    Growing old versus ME/CFS—which is which?

    Good point. Mostly early on, but I have had a few times when I improved hugely more or less overnight (though nowhere near full recovery), for no obvious reason. It never lasted, but the point is that I was functioning at a much higher level. This is one of the main reasons why I have no...
  5. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    And blaming the patient when it doesn't work, and worse. Wildly misused, just like pacing. Exactly. It is just a highly intrusive invasive power grab over our lives, with zero justification, and highly adverse consequences for us. Whatever legitimate practical advice could be currently offered...
  6. Sean

    Characterizing predictors and chronicity of brain fog in long COVID, 2025, Staggs et al.

    A long COVID diagnosis at timepoint 1 was classified by biopsychosocial variables including stress, social support, and sex (women more likely).... These findings highlight the complex biopsychosocial factors that predict having long COVID with brain fog, and the need for interventions to...
  7. Sean

    Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept, 2025, Hale

    Yep. The whole lack of energy concept, while superficially appealing, is seriously misleading. I really wish we could ditch it completely. It is not a lack of energy (certainly in the technical sense), it is the inability to put it into effect without a very high cost, both at the time of...
  8. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    Yep, that is basically what is happening. All superficial short-term feel-good and serious pressure to not report any bad stuff. Then the pros walk away before the reality hits and they have to confront it.
  9. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    You would think so, in theory. But apparently not in practice.
  10. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    Does supported self-management seem the best way forward at this time? For example, if there are other treatments being explored, we may need to consider if they are complimentary and can run in parallel, or perhaps one approach may need to be delayed to a different time so that they run in...
  11. Sean

    How do we stop charities and influencers spreading bio-babble about ME/CFS?'

    If possible and safe for you to do so, then I think it is quite important to get this kind of stuff on the public record, partly to be able to confront those who wrote and signed it and demand an explanation, and partly to expose them to the rest of the world. It might help enlighten and...
  12. Sean

    News from Scandinavia

    The behavioral medicine approach is presented as harmless, There is no such thing as a therapy without risk of harm, one that can only deliver benefit. If a treatment has the power to do good then it also has the power to do harm. Anybody who claims there is should be immediately struck of the...
  13. Sean

    How do we stop charities and influencers spreading bio-babble about ME/CFS?'

    We can counter with the much more fundamental human right for patients to have any therapy, rehabilitative or otherwise, to be firmly based in robust evidence of both efficacy and safety. Besides, all non-palliative therapies are in some sense rehabilitative, in that they aim to improve...
  14. Sean

    Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved (The Sick Times)

    There are still zero approved cures for it Or treatments. Saying 'cures' is giving the BPS club the chance to say they are only offering treatments, to help manage it.
  15. Sean

    UK BACME ME/CFS Guide to Therapy 2025

    At what point does this become straight fraud? Not to mention cruelty. Exactly. It simply does not work without invoking some version of deconditioning, physical or psychological.
  16. Sean

    How do we stop charities and influencers spreading bio-babble about ME/CFS?'

    Massive own goal, and so avoidable. Sometimes we are our own worst enemy. Patients have to accept that at this point there just isn't any robust explanatory or treatment model, and barely anything useful for the most basic management, and no quick or easy way to get to them. That is not...
  17. Sean

    Evaluation of Interventions for Cognitive Symptoms in Long COVID, 2025, Knopman et al

    Why is there so little basic honesty in the first place? The whole quality control process is failing at every level in psychosomatics, from initial writing, through reviewers, to the final approval by the editors.
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