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BACME is in the process of changing their name (whilst maintaining their acronym) to the 'British Association of Clinicians in ME/CFS', which I think is a small but positive step. This is now reflected in the text on their homepage (under 'Who Are We?'), though much of the material on the site...

I disagree. Both the Lancet piece and this piece focus on recent studies that purportedly add to evidence for CBT (not to mention the fact the study is from Norway...). I don't think this is a coincidence. Yes, this article is sort of dressed up a standard 'information' piece on 'CFS', but the...

Not read this, but it might meet your needs: https://bmjopen.bmj.com/content/8/9/e020775

Yes please. Thanks!

I think a lot of the US people used PR and then stayed on that forum. It's a US-based forum and quite US-centric. That's one reason.

I don't think you'll find many people here as most of us are not in the states. I do know a pwME in the US who I think had consultations with Klimas and who I think is a member of this forum. Message me if you want me to put you in contact with them.

Thank you.

Thanks Andy. Got that but was hoping to find their full published report analogous to AfME's: https://www.actionforme.org.uk/uploads/pdfs/Action-for-ME-annual-report-2020-2021-updated.pdf

Does anyone happen to have the most recent Annual/Financial/Trustee Report from the MEA? It's not on their website.

Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.

However, I noticed he's not hosting the next talk, either.

Ahh. I completely forgot about this.

Yes, there's a Q+A box on the Zoom talk. Whether they look at it is probably up to the host. Last night SW didn't take questions from the audience.

It has passed, Trish. It was last night. I agree that it would be good to have someone from our community attend these meetings, or even join BACME.

But I think SW has been hosting this recent round of talks, and I'm wondering if we are to read anything into his absence next week.

I assumed SW would be hosting, but yes it is Roger Kirby. Simon must have other engagements!

Moved posts - Royal Society of Medicine in Conversation - interviews Next Wednesday: https://www.rsm.ac.uk/events/philanthropy/2021-22/phq14

https://www.bacme.info/civicrm/event/info?id=15 BACME networking event: A Conversation About....NICE

I have just noticed the Queen Mary PACE trial page has been removed or moved. This page was full of info on PACE and had links to various documents, such as trial materials. https://www.qmul.ac.uk/wiph/research-projects/current-projects/projects/pace-trial.html This page was active a few...

https://me-pedia.org/wiki/List_of_deaths_caused_by_myalgic_encephalomyelitis_or_chronic_fatigue_syndrome