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I heard a bit of this yesterday. I also had 'lots of complex feelings' about it. The women talked about how dismissed they had felt by people in the medical system when advocating for their children with rare disorders. And how they did not want to be the annoying person who persistently...

I'm also not a fan of animal testing, but infecting some ferrets or hamsters and then, sometime later when they aren't shedding virus, checking all the tissues for virus sounds possible. The difficult question of course is whether these other animals develop post-viral fatiguing syndromes...

When I was 10, I had a year off school with something that was diagnosed as ME, and then I recovered. I don't know what caused it, but I wasn't under any sort of stress then. When I was 16, I had glandular fever (presumably EBV) and shingles - at the same time. I had shingles blisters around...

I can't remember now, but it was while I was on the course of antibiotics. And it took months to not be noticeable.

Fair enough. Good on them for getting some advice, and choosing who they get advice from well. But, if they were writing about an Ebola outbreak, would they talk about managing both the fatigue that the medical staff experienced from working long, emotionally demanding shifts and the...

The abstract suggests the authors fundamentally misunderstand what Long Covid is. It looks as though they don't understand what 'malleable' means either. I hope they meant something more like 'flexible'. It is a very odd choice in that sentence - how could the editors and peer reviewers have...

I think the 'psychiatric' in 'persistent mix of somatic and psychiatric symptoms probably refers to things like 'fatigue'. But yes, about the worry about the ME/CFS study, me too. Given that Walitt has been a leader of the NIH ME/CFS study, I hoped this paper would give a hint of pathologies...

That's bizarre MSEspe, that Singapore article doesn't mention sore throats at all. The closest it comes is "several studies have affirmed its (i.e. harsh parenting) negative associations with subsequent internalizing and externalizing symptoms among children who experience harsh parenting". It...

I was given ciprofloxacin for a bladder infection in 2010. I developed an issue with the tendons above my heel - I was hobbling and complaining about it well before I googled for side effects of the drug. The tendon problem did eventually come right. I felt bad on the drug and for some time...

Walitt has had a key role in recent NIH research into ME/CFS. His published views about fibromyalgia, and the NIH inviting Edward Shorter, an ardent supporter of 'CFS is a psychosomatic illness' to brief them about the illness when a major ME/CFS study was beginning made many of use feel...

NIH launches new initiative to study "Long Covid" More here: Possibility of ME or PVFS after COVID-19, Long Covid

This, coming from Wallit, leaves me feeing very uneasy.

Video of Hungarian doctors discussing Long Covid in children - post and link here: Possibility of ME or PVFS after COVID-19, Long Covid

A useful report from Lahore, Pakistan, surveying people who have had mild Covid-19. Follow-up of COVID-19 Recovered Patients with Mild Disease from a team at the CMH Lahore Medical College At a 3 months followup by telephone, 38% of men and 51% of women reported fatiguability. @Michiel...

Yes, thank you very much for your work and commitment, and for taking the time to answer our questions so fully. Best wishes for the home straight of your PhD. Sounds as though you have some exciting studies under way.

Good points @Samuel. It is very hard to know what should be attributed to ME, and what might be another illness entirely, and what might just be getting older. It's not helped by the fact that even really small, quite inconsequential things can help with a diagnosis of some conditions - like...

A discussion about the causes of Gulf War Illness has been moved here: Gulf War Illness - causes

An off-topic strand of conversation has been split into a new thread here: The influence of the biopsychosocial (BPS) view of ME/CFS in government guidelines and medical practice in different countries (past and present)

Thanks Michiel. Those four graphs aren't very convincing, are they? There might be statistically significant differences, but there's so much overlap, that it's difficult to believe that levels of dUTPase antibodies are, on their own, the answer to the question of ME/CFS or GWI.

I've included a link to the video, along with some other resources, in a list for Allied Health Professionals in my region. The video shows what ME/CFS is like very well, and doesn't take long to watch.