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I think the single most important fact about human psychology is that we see what we want/expect to see, and it takes considerable disruption and contradiction to get us to see otherwise. Which is why robust methodology is so important.

THIS! It is infantilising, intrusive, and insulting.

Evidence Unmasked ME/CFS Research Unmasked Behind ME/CFS Research (Could substitute Science for Research.) ––––– ME/CFS Research for Dummies :sneaky:

Whose perception? The patient's, or the clinician's?

The whole purpose of this is to reduce the demand on the health system by discouraging patients from reporting these symptoms in the first place, not to actually treat or cure patients. It is a political and cost-cutting project, not a science-based medical one.

And disgust.

Good point. The name needs to be distinctive enough to not throw up vast numbers of irrelevant results in a general search engine.

But many diagnoses aren't as definitive as we think. Unless it is a psychosomatic diagnosis. Then it is inviolate, and how dare anybody suggest otherwise.

Combine angry Aussie koala with polite English restraint. :thumbsup: Nice work, @Trish.

:D

The one thing you can never get those who have seen the light to do is shut up about it.

ME/CFS Science Scrutiniser ME/CFS Science Auditor –––––––––––– I would definitely keep this tag line immediately underneath whatever name you end up with: "Bringing clarity to ME/CFS research findings"

Doctors are warning that some desperate patients are getting stuck in a quagmire of pseudoscience that has developed around the condition. Then proceeds to promote the worst of it from doctors.

That is exactly what is going to happen. It will delay diagnosis and treatment of other diseases, which is going to increase morbidity and mortality for patients. Did they discuss that blindingly obvious risk certainty? It is incredibly reckless and callous of them. All just so they can having...

ME/CFS Science Analysis ? Accurate and neutral, if not particularly exciting. Seeing how much deference is paid to formal honourifics in certain quarters, how about Lord Sir ME/CFS Skeptic ?

Biopsychosocial means whatever the person using the term wants it to mean.

One trick ponies. They are clearly going to apply this failed model to everything in sight.

Unfortunately, because they are selling something that people in economic and political power really really want – pseudo-scientific excuses for shitty medical and public policy – they are being taken very seriously, and I don't expect that to change any time soon.

Yes, there needs to be a distinction drawn between unrealistic and realistic views of our bodies. I don't dislike my body, as such. Apart from being a few kilos overweight and ageing it had never been a general issue for me in that sense. For example, I am well on my way to normal male-pattern...

This is a very important point. I have not lost the use of muscles nor muscle strength, broadly speaking, especially for short term limited use. But I have lost the capacity to use them consistently and repeatedly at a normal healthy day-to-day level without paying a high price for it. I have...